Vous recevez ce courriel, car vous vous êtes abonné·e à la veille scientifique trimestrielle de l'Observatoire québécois de la proche aidance. Bonne lecture ! | L'implication des PPA dans les soins et services | Les articles inclut dans cette thématique étudient la participation des membres de la famille, des ami·e·s ou d'autres personnes significatives dans la prise en charge et l'accompagnement des personnes usagères dans le réseau de la santé et des services sociaux (RSSS). Cela inclut la participation aux soins, aux services et aux prises de décisions, la communication et la collaboration entre les PPA et les professionnel·le·s, les formations adaptées pour soutenir les PPA dans leur rôle, ainsi que la prise en compte de leurs besoins dans le RSSS. | | ▫️ Kilpatrick, K., Savard, I., Renière, M., Bouabdillah, N., Houle, J., St-Louis, G., Gauthier, N., Jabbour, M., & Tchouaket, E. (2026). Describing NP Practice and Team Functioning in Home Care and an NP-led Clinic. Canadian Nurse Practitioner Journal, 6(1), 87–97. https://cnpj.ca/index.php/cnpj/article/view/520 ▫️ Majnemer, A., Fehlings, D., Alkot, M., Sanford, M. R., & Ogourtsova, T. (2026). Bridging the Gap in Early Cerebral Palsy Detection: Primary Care Providers’ and Specialists’ Perspectives on Implementing PROMPTs for Referral. Child: Care, Health and Development, 52. https://doi.org/10.1111/cch.70287 | La navigation des soins et services | Les articles inclus dans cette thématique étudient le processus de navigation, d’orientation, de coordination, de soutien et de défense des droits dans l’accès aux ressources du RSSS, généralement pour la personne aidée. | | Aucun article ne concerne cette thématique | La qualité de vie des PPA | Les articles inclus dans cette thématique évaluent la qualité de vie des PPA à l’aide d’indicateurs liés à leur bien-être (p. ex : santé mentale, stress, isolement social, fardeau). Les articles se penchant sur les besoins des PPA pour améliorer leur qualité de vie y sont également inclus. | | ▫️ Carruyo Soto, Y. A., Buron, L., Kang Dufour, M.-S., Dufour, C., Longaud, A., Kieffer, V., Lamore, K., Favré, E., Karsenti, L., Sultan, S., Rondeau, É., Desjardins, L., Flahault, C., & Lopez, C. (2026). Neuropsychological outcomes in pediatric brain tumor survivors: Contributions of sociocontextual factors. Child Neuropsychology, 32(5). https://doi.org/10.1080/09297049.2026.2676277 ▫️ Conway, E., Doucet, S., McAiney, C., Vedel, I., Reid, A. E., & Luke, A. (2026). Exploring Diagnostic and Post-Diagnostic Care Experiences among People Living with Dementia and Care Partners in Canada: A Qualitative Study. Canadian Journal on Aging / La Revue Canadienne Du Vieillissement. https://doi.org/10.1017/S0714980826100725 ▫️ Demers, C., Higgins, J., Kerba, J., Bouchard, I., Meloche, C., Curnier, D., Marcil, V., Sultan, S., Laverdière, C., Sinnett, D., & Gélinas, I. (2026). Acceptability and functional benefits of a health promotion program in pediatric oncology: A mixed-methods study. Frontiers in Pediatrics, 14. https://doi.org/10.3389/fped.2026.1753530 ▫️ Friedrich, S., Willems, J., Rodger, S., & coll., (2026). Transition to adulthood in Duchenne Muscular Dystrophy: A systematic review with narrative synthesis on health systems, policies, and the role of health care providers. Frontiers in Public Health, 14. https://doi.org/10.3389/fpubh.2026.1771855 ▫️ Lessard, É., Marcoux, I., & Ummel, D. (2026). Au-delà du « bien mourir »: Diversité des expériences, justice sociale et solidarité située. Jusqu’à la mort accompagner la vie, 164(1), 49–65. https://doi.org/10.3917/jalmalv.164.0049 ▫️ Li, L., Gorter, J. W., Cook, K., Toulany, A., Robeson, P., Geboers, J., Kassam‐Lallani, D., Grahovac, D., Bogossian, A., Rojas, R. G., Galuppi, B., Mccauley, D., & Fournier, A. (2026). Growing Up Through a Pandemic: A Mixed‐Methods Study of How the COVID‐19 Pandemic Shaped the Transition to Adulthood for Youth With Special Healthcare Needs and Their Families. Child: Care, Health and Development, 52. https://doi.org/10.1111/cch.70294 ▫️ Maybery, D., Davidson, G., Grant, A., Piché, G., Yates, S., Ruud, T., Dunkley-Smith, A., Banfield, M., Bibb, J., Jazayeri, D., & Palmer, V. J. (2026). Establishing research and translation priorities and care pathways for families where a parent lives with mental ill health. PLOS Mental Health, 3(6). https://doi.org/10.1371/journal.pmen.0000266 ▫️ Rochefort, C., Rivard, M., & Paradis, A. (2026). The Unique and Complex Experience of Growing Up With a Sibling Who Exhibits Severe Challenging Behaviors in the Context of a Neurodevelopmental Disability: A Trauma-Based Study. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-026-07323-2 | L'expérience relationnelle des PPA | Les articles inclut dans cette thématique étudient les aspects relationnels de la proche aidance. Ils s’intéressent à l’impact des activités de soutien sur les relations entre les membres de la dyade, ainsi que sur celles entre les différent·e·s proches qui composent le réseau de soutien. | | ▫️ Montigny, F. de, René, C., Nascimento, L. C., Polita, N. B., Danford, C. A., & Gervais, C. (2026). Accompagner les pères confrontés à la maladie, voire à la mort de leur enfant. Le Carnet Psy, 287(3), 44–47. https://shs.cairn.info/revue-le-carnet-psy-2026-3-page-44 | 👉 Envie de découvrir les plus récentes avancées scientifiques en proche aidance ? Ne manquez pas la nouvelle édition du Bulletin de veille 2025, qui analyse les résultats de 49 articles scientifiques publiés en 2025 par des chercheuses et chercheurs québécois·e·s. | Pour connaître les étapes méthodologiques d'élaboration de la veille scientifique, consultez la méthodologie. | 
L’Observatoire québécois de la proche aidance est un carrefour de production, de partage et de transfert de connaissances fiables, essentielles et pertinentes pour faire connaître et reconnaître la proche aidance afin de mieux soutenir l’ensemble des personnes concernées. Le mandat pour le développement, l’organisation et le soutien administratif de l’Observatoire a été confié au CIUSSS du Centre-Ouest-de-l'île-de-Montréal. Suivez-nous sur Facebook et LinkedIn ! 
info@observatoireprocheaidance.ca | You are receiving this email because you subscribed to the quarterly scientific watch from the Quebec Observatory on Caregiving. Enjoy your reading! | Caregiver involvement in care and service delivery | This theme refers to the involvement of family members, friends or other significant individuals in the care and support of service users within the health and social services system. It includes caregiver participation in care, services and decision-making; communication and collaboration between caregivers and professionals; specialized training to support caregivers in their role; and systematic consideration of their needs. | | ▫️ Kilpatrick, K., Savard, I., Renière, M., Bouabdillah, N., Houle, J., St-Louis, G., Gauthier, N., Jabbour, M., & Tchouaket, E. (2026). Describing NP Practice and Team Functioning in Home Care and an NP-led Clinic. Canadian Nurse Practitioner Journal, 6(1), 87–97. https://cnpj.ca/index.php/cnpj/article/view/520 ▫️ Majnemer, A., Fehlings, D., Alkot, M., Sanford, M. R., & Ogourtsova, T. (2026). Bridging the Gap in Early Cerebral Palsy Detection: Primary Care Providers’ and Specialists’ Perspectives on Implementing PROMPTs for Referral. Child: Care, Health and Development, 52. https://doi.org/10.1111/cch.70287 | Navigating care and services | A caregiver's navigation of care and services refers to the process of guiding, coordinating, supporting, and advocating for the health and social services network's resources, usually for the care receiver. | | No articles are related to this topic | Caregivers’ quality of life | The articles included under this theme assess the quality of life of caregivers using indicators related to the well-being of this group (e.g. mental health, stress, social isolation, burden). Articles looking at the needs of caregivers in order to improve their quality of life are also included. | | ▫️ Carruyo Soto, Y. A., Buron, L., Kang Dufour, M.-S., Dufour, C., Longaud, A., Kieffer, V., Lamore, K., Favré, E., Karsenti, L., Sultan, S., Rondeau, É., Desjardins, L., Flahault, C., & Lopez, C. (2026). Neuropsychological outcomes in pediatric brain tumor survivors: Contributions of sociocontextual factors. Child Neuropsychology, 32(5). https://doi.org/10.1080/09297049.2026.2676277 ▫️ Conway, E., Doucet, S., McAiney, C., Vedel, I., Reid, A. E., & Luke, A. (2026). Exploring Diagnostic and Post-Diagnostic Care Experiences among People Living with Dementia and Care Partners in Canada: A Qualitative Study. Canadian Journal on Aging / La Revue Canadienne Du Vieillissement. https://doi.org/10.1017/S0714980826100725 ▫️ Demers, C., Higgins, J., Kerba, J., Bouchard, I., Meloche, C., Curnier, D., Marcil, V., Sultan, S., Laverdière, C., Sinnett, D., & Gélinas, I. (2026). Acceptability and functional benefits of a health promotion program in pediatric oncology: A mixed-methods study. Frontiers in Pediatrics, 14. https://doi.org/10.3389/fped.2026.1753530 ▫️ Friedrich, S., Willems, J., Rodger, S., & al., (2026). Transition to adulthood in Duchenne Muscular Dystrophy: A systematic review with narrative synthesis on health systems, policies, and the role of health care providers. Frontiers in Public Health, 14. https://doi.org/10.3389/fpubh.2026.1771855 ▫️ Lessard, É., Marcoux, I., & Ummel, D. (2026). Au-delà du « bien mourir »: Diversité des expériences, justice sociale et solidarité située. Jusqu’à la mort accompagner la vie, 164(1), 49–65. https://doi.org/10.3917/jalmalv.164.0049 ▫️ Li, L., Gorter, J. W., Cook, K., Toulany, A., Robeson, P., Geboers, J., Kassam‐Lallani, D., Grahovac, D., Bogossian, A., Rojas, R. G., Galuppi, B., Mccauley, D., & Fournier, A. (2026). Growing Up Through a Pandemic: A Mixed‐Methods Study of How the COVID‐19 Pandemic Shaped the Transition to Adulthood for Youth With Special Healthcare Needs and Their Families. Child: Care, Health and Development, 52. https://doi.org/10.1111/cch.70294 ▫️ Maybery, D., Davidson, G., Grant, A., Piché, G., Yates, S., Ruud, T., Dunkley-Smith, A., Banfield, M., Bibb, J., Jazayeri, D., & Palmer, V. J. (2026). Establishing research and translation priorities and care pathways for families where a parent lives with mental ill health. PLOS Mental Health, 3(6). https://doi.org/10.1371/journal.pmen.0000266 ▫️ Rochefort, C., Rivard, M., & Paradis, A. (2026). The Unique and Complex Experience of Growing Up With a Sibling Who Exhibits Severe Challenging Behaviors in the Context of a Neurodevelopmental Disability: A Trauma-Based Study. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-026-07323-2 | Caregivers’ relational experience | The articles contained under this theme study the relational aspects of caregiving. They look at the impact of support activities on the relationships maintained between the members of the dyad or on the whole support system deployed within the caregiving relationship. | | ▫️ Montigny, F. de, René, C., Nascimento, L. C., Polita, N. B., Danford, C. A., & Gervais, C. (2026). Accompagner les pères confrontés à la maladie, voire à la mort de leur enfant. Le Carnet Psy, 287(3), 44–47. https://shs.cairn.info/revue-le-carnet-psy-2026-3-page-44 | 👉 Interested in discovering the latest scientific advances in caregiving? Don’t miss the 2025 edition of the Scientific Watch Bulletin, which analyzes the findings of 49 scientific articles published in 2025 by Quebec-based researchers. | To learn more about the methodological steps involved in developing our scientific watch, consult the methodology. |
The Quebec Observatory on Caregiving is a hub for the production, sharing and transfer of reliable, essential and relevant knowledge aimed at raising awareness and fostering the recognition of caregiving, to better support all caregiving stakeholders. The Observatory’s development, coordination and administration has been entrusted to the CIUSSS du Centre-Ouest-de-l'île-de-Montréal. Follow us on Facebook and LinkedIn !
info@observatoireprocheaidance.ca | | | | |
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