Advancing Indigenous data governance principles Join us for our next Big IDEAs About Health Data on MAY 22 at 10:00 a.m. PT, featuring Dominique Legacy and Laura Ferreira-Legere, who will discuss working with First Nations, Inuit and Métis partners to develop unique partnerships that advance Indigenous data governance and data sovereignty. Register today! | | Minimum elements for feasibility of algorithms A new paper in the International Journal of Population Data Science from HDRN Canada recommends minimum elements for reporting a feasibility assessment of algorithms based on routinely collected health data. The 11 new elements for transparent reporting provide a framework for supporting multi-regional research. | | Public trust, data literacy & health data in Canada HDRN Canada has developed a paper on public trust and data literacy, in collaboration with the Public Health Agency of Canada, building on principles outlined in the Pan-Canadian Health Data Charter, making recommendations for trustworthy practices to help health system partners earn trust in how health data are managed and used. | | NEW Pragmatic clinical trials open-access modules HDRN Canada Pragmatic Trials Training Program offers weekly open-access learning modules covering various aspects of pragmatic clinical trials. Check out the recently released modules on statistical analysis plans, data and safety monitoring, and patient-reported outcomes in pragmatic trials. Visit pragmatictrialstraining.ca for more! | | | | Demystifying data harmonization | JUNE 10 10:00 a.m PT Data harmonization is essential for producing high-quality, multi-regional, multi-cohort research, but it’s often misunderstood. In this webinar, experts from Maelstrom Research share best practices for managing and harmonizing large-scale cohort data, using the Canadian Partnership for Tomorrow’s Health (CanPath) as a case study. REGISTER | | | | HDRN Canada at CAHSPR 2025! | MAY 26 -29 OTTAWA Members of HDRN Canada's Public Engagement, Data Access Support Hub/DASH, Algorithms & Harmonized Data, and Inclusion, Diversity, Equity & Accessibility teams will present at the Canadian Association for Health Services and Policy Research conference, showcasing their latest work to advance multi-regional health data access. REGISTER | | | CBRC seeks Research Director Are you a leader with advanced quantitative research skills, a track record of success securing large grants from government and research funders, and a PhD degree in a health-related field? The Community-based Research Centre is recruiting for a Research Director. Submit your application by May 30. | | Multi-regional study of primary care capacity in Canada A publication in BMJ Open co-authored by HDRN Canada Executive member Dr. Ted McDonald and colleagues explores the gap between population primary health care needs and health system capacity using multi-regional administrative health data from British Columbia, Manitoba, New Brunswick and Nova Scotia. | | News from Across the Network | Child & youth mental health still a concern A new report from the Canadian Institute of Health Information used CIHI administrative data to examine children and youth who received care for mental health disorders, including visits to the ED, hospitalizations, visits to physicians and medication use. Results show that child and youth mental health remains a concern. | | First clinical dataset added to HRDP-SK Health Research Data Platform-Saskatchewan has made its first clinical dataset available, adding the Mental Health and Addictions Information System to five existing administrative databases in HRDP-SK. Data elements include client demographics, addictions, presenting issues, suicide behaviors, provider information and more. | | Portrait of sexual or gender minorities in Québec Institut de la statistique du Québec has developed a social demographic portrait of sexual or gender minorities in Québec, focusing on the production of statistics on sexual and gender minorities based on population surveys, with the aim of defining concepts, assessing production possibilities and raising associated methodological issues. | | Expanded role for pharmacists in New Brunswick Research from NB-IRDT combined clinic operational data from six pharmacy clinics in New Brunswick with survey data to assess a Pharmacist Care Clinic pilot program. The pilot addressed rising demands for health services among older adults, and findings showed the program improved timely access to care and patient satisfaction with care. | | Assessing primary care for older adults in BC PopData BC has received approval for data access for a research study to assess how access to care for older adults in British Columbia changed during the pandemic. The study will link BC Ministry of Health datasets with data from Immigration, Refugees and Citizenship Canada as well as the BC Index of Multiple Deprivation. | | Patient Partnership Guidelines in research & practice Unité de Soutien SSA has released practice-based guidelines for building and sustaining patient partnerships in research and clinical practice. The new guidelines are based on the experiences of patient partners, researchers and clinicians, as well as a review of the scientific literature and showcase the impact of patient partnership. | | | | DASH Researcher Impact Story: Dr. Garrison What were the opportunities and challenges of accessing data from multiple provinces to support the largest randomized trial ever conducted by Canadian primary care? Check out the recording of our first DASH Researcher Impact Story webinar featuring Dr. Scott Garrison and Erik Youngson, from HDRN Canada’s DASH Team. WATCH | | | | The Power of Public & Patient Research This episode of In Our VoICES explores the power of public and patient involvement in shaping health care research. Laura Ferreira-Legere and ICES Public Advisory Council members Jenny Kirk and Jemal Demeke discuss the importance of lived experience, addressing misinformation, and ensuring research reflects community needs. WATCH | | | | | | |
.png?1747089463977)
