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HDRN Data Points / December 2022

What's up @ HDRN Canada

Illustration of a brown woman with dark brown hair pulled back, wearing a white lab coat & stethoscope, holding a a report, and standing in front of a large green map of Canada with blue connected lines. Text reads: Social licence describes what uses of health data are supported by the public

New report: Social licence for health data use

What is social licence and why is it important for understanding public support for health data use? Twenty experienced patient and public advisors shared their ideas and concerns about uses of health data in a ground-breaking report co-authored by HDRN Canada and GRIIS. Read and download the report here.

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Blog post: An insider's look into public engagement

Ensuring purposeful and ongoing public and community involvement is a key strategic goal for HDRN Canada. But what does public engagement look like in practice? Our Public Engagement Fellow Julia Burt offers an inside peak into the variety of ways HDRN Canada reaches out to the public in this blog post for NL Support.

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Update: HDRN Canada Public Advisory Council

HDRN Canada's Public Advisory Council held its first hybrid meeting in October, allowing members to gather in person as well as via Zoom. Planning has begun for a knowledge sharing summit next spring to connect with patient and community groups across Canada. Learn more about the PAC in its 2021-2022 Annual Report.

Upcoming Events

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THURSDAY, DECEMBER 15 | 12:00pm EST

Are you a researcher seeking administrative health data from more than one province or territory? Attend this webinar to learn how HDRN Canada'a Data Access Support Hub (DASH) can help you navigate the data access process, as well as the services and tools for conducting projects in multiple regions. REGISTER

News from Across the Network

This image contains no significant visuals. Black text over a yellow background reads. Top 5 symptoms reported by 2422 Albertans as of November 2022, more than one year after their first Covid-19 test. Positivity for Covid-19. Fatigue 44% Negative for Covid-19. Fatigue 28%

Alberta Long COVID Study: Top 5 symptoms reported 

A new infographic from AbSPORU presents the top five symptoms reported by Albertans one year after their first COVID-19 test. It is part of the Alberta Long COVID Study, which provides up-to-date knowledge that has helped to enable responsiveness by the Alberta‚Äôs government and health system. Download the infographic.

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Milestone report marks 30 years for ICES

ICES has published its 2021-2022 Annual Report, a key milestone as the institute marks 30 years of cutting-edge health research in Ontario. Learn how ICES connects scientists and policymakers with data and expertise to ensure robust evidence is available to the health care system. Read more

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Using administrative data to predict MS progression

Researchers at the University of British Columbia are using nine linked data sets from PopDataBC, along with clinical data, to generate comprehensive models to predict MS progression, relapse, treatment response, non-adherence, and cost in order to identify epidemiological and clinical factors associated with disability progression. Read more.

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Self-harm & suicides in Saskatchewan First Nations 

A detailed analysis conducted by Saskatchewan Health Quality Council at the request of the Federation of Sovereign Indigenous Nations reveals an alarmingly wide and growing gap between the rates at which First Nations people are attempting and completing suicide, and rates in the rest of the Saskatchewan population. Read more.

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Assessing immigrant retention in NB

A new report led by Ted Macdonald, HDRN Canada Lead and director of New Brunswick Institute for Research, Data and Training, used new data on immigrants to assess arrival counts and retention rates, and to learn how the first year of the pandemic may have impacted efforts to increase the province's population. Read more.

#ICYMI

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Enhance your research with CAIR

Discover how the Centre for Analytics, Informatics and Research (CAIR), a high-performance computing centre with the capacity to rapidly process, analyze and store vast amounts of data, can enhance your research.

WATCH

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Turning evidence into policy

How do scientists at the Manitoba Population Research Data Repository at the Manitoba Centre for Health Policy turn evidence into policy? Check out this talk by Dr. Nathan Nickel, HDRN Canada Executive member.

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