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Seasons greetings from the Scientific Director

Dear friends and colleagues,

As 2023 comes to a close, I’d like to share some reflections on HDRN Canada's accomplishments over the past year. I am continuously heartened by the passion and dedication of our membership as we advance our collective goal of developing services and supports for multi-regional research to improve health and health equity. 2023 was a year of continued growth for our network. From our team across the country, to our partnerships and collaborations, we are expanding our capacity to do this important work on many fronts.

We marked a number of “firsts” this year. In April, we held our first-ever public forum, which brought people from across Canada together, both in-person and online, for a vibrant discussion about public involvement in health research and uses of health data. We started the process of developing a more comprehensive plan for articulating and delivering on our strategic objectives related to Inclusion, Diversity, Equity and Accessibility. This will guide how we embed IDEA principles in our work internally, and how we support these same principles in multi-regional research. Throughout the year, we offered many opportunities for collective learning, including our Accessing Data through DASH webinars and our Big IDEAs About Health Data Speaker Series. More recently, we launched a redesigned website that is accessible, user-friendly, and will grow as more resources and services are available.

I am incredibly proud of our accomplishments as a network, and underline that these reflect the hard-work and dedication of our members as well as the strength of our partnerships. I equally look forward to the many exciting things that will happen next year. I wish you all a restful and joyous holiday season and a great start to the new year!

Warmly,

Kim 

Kim McGrail

CEO, HDRN Canada

What's Up @ HDRN Canada?

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New, accessible HDRN Canada website launched!

HDRN Canada's website, hdrn.ca, has been redesigned to align with best practices in accessibility. The new website is designed to create a better user experience for diverse audiences looking to learn more about our work and explore resources on accessing multi-regional data.

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Researcher Spotlight: Dr. David Rudoler

Learn how multi-regional administrative data are used to examine psychiatrist practice patterns across Canada in Researcher Spotlight: Dr. David Rudoler. Read about Dr. Rudoler's experience using the Data Access Support Hub (DASH) to access data from BC, Manitoba and Ontario.

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Pragmatic Trials Training Program applications open!

Interested in learning the art of conducting pragmatic trials? There's still time to apply for the HDRN Canada Pragmatic Trials Training Program, a two-year program coordinated by the Schulich School of Medicine & Dentistry. Apply by December 22.

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Call for HDRN Canada Board of Directors members

Applications are open for HDRN Canada's Board of Directors. The Board provides responsible and effective governance for HDRN Canada's activities and affairs. English and French speaking applicants from diverse backgrounds are encouraged to apply by January 31.

#JobAlert

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HDRN Canada Knowledge Translation Coordinator

Are you an experienced communicator with a passion for health research, a specialy in science communications,  and the ability to transform data into compelling narratives? HDRN Canada and PopData are hiring a Knowledge Translation Coordinator. Apply by January 1.

Upcoming Events

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Federated Analysis 101 | JANUARY 11 | 9:00 - 10:00 a.m. PT

HDRN Canada Scientific Director Dr. Kim McGrail and Dr. Robert Platt, CNODES Executive Co-Lead, will present Federated Analysis 101 as the inaugural webinar of Federated Analysis: State of the Science Collective Learning Series.

REGISTER

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Accessing linked CLSA data at HDRN Canada data centres | JANUARY 17 | 9:00 - 10:00 a.m. PT

The Canadian Longitudinal Study on Aging (CLSA) is hosting a webinar on their collaborative work with HDRN Canada to enable CLSA data linkage to health care administrative databases across the country.

REGISTER

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Sociodemographic Data in Canada: Use & Governance | JANUARY 25 | 10:00 a.m. PT

Dr. Kwame McKenzie and Jemal Demeke of the Wellesley Institute explore the use and governance of sociodemographic data in Canada, and how it can be used to track disparities and advance equity for marginalized populations as part of our Big IDEAs About Health Data Speaker Series.

REGISTER

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Micro-certificate in Health Data Analytics  JANUARY 23 - MAY 20

Registration is now open for the first intake of the Micro-certificate in Health Data Analytics, developed by the University of British Columbia's Department of Medicine and Data Science Institute to offer foundational data analytics training with local health system data. 

REGISTER

News from Across the Network

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Maximizing health data sharing in Canada

Connecting the Dots: The Expert Panel on Health Data Sharing is a new report from the Council of Canadian Academies, featuring HDRN Canada Executive Dr. Ted McDonald, which explores how overcoming a culture of caution could improve health data sharing in Canada.

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Fewer young people hospitalized for substance use

New findings from the Canadian Institute for Health Information show that rates of hospitalization for substance use among young Canadians dropped by about 10 percent last year, compared with the previous year, though rates remain higher than before the pandemic.

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CIHR Spring 2024 Project Grant competition

The Canadian Institutes of Health Research'Spring 2024 Project Grant competition opens on January 10. Check out HDRN Canada’s latest Accessing Data through DASH webinar to learn how the Data Access Support Hub can support applications seeking multi-regional data. 

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Social engagement & political participation of youth

The Institut de la statistique du Québec (ISQ) released a portrait of factors that contribute to young adults' civic engagement. ISQ has followed a cohort of children born in Québec in 1997-1998 as part of the first edition of the Québec Longitudinal Study of Child Development.

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#16Days of action against domestic violence

Follow the Manitoba Centre for Health Policy's #16Days campaign to learn about research focused on intimate partner violence using administrative health data. #16Days of Action Against Domestic Violence is part of Domestic Violence Awareness Month, which occurs every December.

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New Brunswick population & demographic counts

The fourth update in NB-IRDT's series on New Brunswick's population and demographics shows an overall positive trend of population growth. Building on prior research, it features updates to the population snapshot, comparing results from January 2019 to December 2022. 

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New insights on 2022 deaths & dental care in Canada

Statistics Canada had more than 10 health releases in November, including data on deaths in 2022 from the Canadian Vital Statistics Deaths Database and new insights from the Canadian Community Health Survey on Canadians’ access and use of dental care services.

Publications

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Community-Engaged Research Ethics Training

An article published in Harm Reduction Journal, authored by HDRN Canada IDEA Team member Jeffrey Morgan, describes a different approach to capacity building and training in research ethics for community members involved in the research process.

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Are your data being managed responsibly?

Check out this article in The Conversation, based on HDRN Canada research led by Dr. Alison Paprica, that identifies 15 questions you can ask to determine if the essential requirements for responsible data stewardship have been met, translated into plain language.

In Case You Missed It!

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Privacy in an AI World

What are the harmful issues related to privacy and ethics arising from the use of artificial intelligence in data research? Watch the recording of a recent webinar from HDRN Canada Privacy Lead Dr. Donna Curtis Maillet, hosted by NB-IRDT

WATCH

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CRDCN 2023: Spotlight on Health Partnership

Check out the recording from Armchair Conversation: Spotlight on Health Partnership from CRDCN 2023, featuring HDRN Canada Scientific Director Dr. Kim McGrail and HDRN Canada Executive Member Dr. Ted McDonald

WATCH