Centring racial equity throughout the data lifecycle How do we incorporate racial equity into the foundations of data infrastructure? Our Big IDEAs About Health Data Speaker Series is back with Dr. Amy Hawn Nelson and Isabel Algrant discussing racial equity throughout the data life cycle. Register now for the first session of our 2025/26 lineup! | | Public Trust, literacy & health data in Canada Public trust in how health data are collected, stored and used is critical, but how do organizations engage in trustworthy data practices? A new paper by HDRN Canada shows that data literacy, transparency and public benefit are key to an emerging set of principles-based recommendations for trustworthy health data practices. | | Dr. Robert Bell elected Chair of Canada’s Drug Agency Dr. Robert Bell has been elected as the new Chair of Canada's Drug Agency. A former orthopedic oncology surgeon, Dr. Bell is a member of the Governing Council at the Canadian Institute of Health Research. He also serves as Chair of HDRN Canada's Board of Directors. Congratulations, Dr. Bell! | | Partnering to improve health equity through data What happens when academics, community groups and government collaborate on research projects to improve health outcomes? Learn how SPECTRUM is leveraging the Manitoba Population Research Data Repository, a powerful tool for evidence-based research, leading to better policy development in our latest news story. | | | | CHIMA Health Information Summit OCTOBER 2 | TORONTO CHIMA's annual conference is designed for senior health information professionals, executives, data and analytics leaders, policy makers, and emerging leaders who are passionate about using data-driven insight to lead transformative change in health information management in Canada. REGISTER | | | | Health Workforce Canada Connects OCTOBER 15-16 | VANCOUVER This two-day action-oriented event will tackle health system complexity through focused workshops on Canada’s most pressing health workforce issues, such as interprovincial credential recognition, team-based care, rural and remote solutions, education and artificial intelligence. REGISTER | | | News from Across the Network | CIHI's Health Data Stewardship Principles CIHI is developing health data stewardship principles in consultation with federal, provincial and territorial governments, Indigenous representatives, health data organizations and researchers, to build consensus around safe and ethical practices for health data sharing, access and use and to adopt a data stewardship approach. | | NB-IRDT joins Canada’s Energy Data Trust NB-IRDT has joined the Energy Data Trust, a national initiative launched to independently facilitate secure, governed and ethical access to energy and energy-related data from utilities and other stakeholders to support Canada’s clean energy transition, make evidence-informed decisions and foster innovation. | | New study published on Ontario’s correctional system Scientists from ICES are the first in Canada to utilize population-level administrative health data to examine how correctional populations in Ontario are using health care services overall and for substance-use-related issues. The goal is to better understand their needs and identify system improvements. | | Another year of impactful population research
Manitoba Centre for Health Policy has released its 2024-2025 Annual Report, marking another year of creating and facilitating impactful population research that explores the health and well-being of Manitobans through its repository of linkable administrative data. Check out highlights from HDRN Canada Executive Dr. Nathan Nickel.
| | Improving the quality of paediatric diabetes care in BC
Data access has been granted for a new study supported by Population Data BC that will link researcher-collected data with data sets from the BC Ministry of Health, the BC Perinatal Data Registry, LifeLabs and the BC Pediatric Diabetes Registry to inform clinical practice in response to rising levels of diabetes in children in Canada and globally.
| | New mother–child data linkages released Researchers can now explore maternal and infant outcomes using Statistics Canada's newly updated mother-centric data linkages. The 2023 release combines birth, census and health records to support research on social determinants and early life health, including child mortality and child hospitalization data. | | Eight ways to refocus territorial acknowledgments It is critical that territorial acknowledgements transcend words to become a living action and ongoing commitment to reconciliation. But how? Unité de Soutien SSA Québec's Indigenous patient partner circles share their perspectives, experiences and make recommendations in this report. | | Leading the way for Indigenous health solutions Yukon SPOR Support Unit has published a new report on culturally appropriate care and the health and well-being of Indigenous people in Dawson City, co-authored by Piper Fordham, a Teslin Tlingit First Nation Citizen and graduate of YSPOR's Junior Researcher Program, and HDRN Canada Lead Dr. Michelle Leach. | | | | What is distributed analysis?
How can distributed analysis help you conduct multi-regional research? HDRN Canada's Dr. Jean-François Ethier and Carrie-Anne Whyte explain how this innovative methodology for data analysis will transform Canadian health research and how you can access it through our Data Access Support Hub (DASH). WATCH | | | | Public trust, literacy & health data Members of the public expect organizations that collect, protect, share and use health data to be trustworthy. But how is trust earned—and how is it maintained? HDRN Canada's Julia Burt and Dr. Kim McGrail share six recommendations for trustworthy data practices based on new research in this recording of our exclusive webinar. WATCH | | | | | Accessing Data through DASH Are you a researcher seeking administrative health data from more than one region? Need support in preparing your CIHR Fall Project Grant? Check out the recording of our recent Accessing Data through DASH webinar. HDRN Canada's Carrie-Anne Whyte and Stefana Jovanovska explain how our Data Access Support Hub simplifies the multi-regional data access process. WATCH | | | | Collective impact improves health care HDRN Canada CEO and Scientific Director Dr. Kim McGrail joined a panel hosted by CIHI to discuss the collective impact framework, a new collaborative way of working that includes a common agenda, shared measurement, mutually reinforcing activities, continuous communication and backbone support to tackle large, complex challenges in health care systems. WATCH | | | | | | |
