Vous recevez ce courriel, car vous vous êtes abonné·e à la veille scientifique trimestrielle de l'Observatoire québécois de la proche aidance. Bonne lecture ! | L'implication des PPA dans les soins et services | L’implication des personnes proches aidantes (PPA) dans les soins et services fait référence à la participation des membres de la famille, des ami·e·s ou d’autres personnes significatives dans la prise en charge et l’accompagnement des personnes usagères dans le réseau de la santé et des services sociaux (RSSS). Cela inclut la participation aux soins, aux services et aux prises de décisions, la communication et la collaboration entre les PPA et les professionnel·le·s, les formations adaptées pour soutenir les PPA dans leur rôle, ainsi que la prise en compte de leurs besoins dans le RSSS. | | ▫️ Beydoun, S. A., Gagné, C., Neubarth, N. S., Abdallah, J.-P., Kifell, J., & Goldfarb, M. (2025). Patient- and Family-Centered Care Recommendations in Cardiology Guidelines: An AI-Driven Systematic Review. CJC Open, https://doi.org/10.1016/j.cjco.2025.05.017 ▫️ Rennick, J. E., Southall, K., Carnevale, F., Dryden-Palmer, K., Patel, H., Dagenais, M., Buchanan, F., Avery, S., Razack, S., St-Sauveur, I., Cohen, E., Fontela, P., & Law, S. (2025). Using experience-based co-design to explore care experiences and identify practice change priorities for children with medical complexity in the paediatric intensive care unit. BMJ Open, 15(5), e096181. https://doi.org/10.1136/bmjopen-2024-096181 | La nagivation des soins et services | Les articles regroupés dans cette thématique concernent le processus de navigation, d’orientation, de coordination, de soutien et de défense des droits dans l’accès aux ressources du RSSS, généralement pour la personne aidée. | | ▫️ Couture, M., Courteau, J., Brodeur, S., Chiu, Y. M., Courteau, M., Dubé, É., Thomas, N., Lesage, A., Fombonne, É., & Dufour, I. (2025). Male and Female Healthcare Trajectories in Autism: Are There Any Differences Considering Age at Diagnosis and Intellectual or Developmental Disabilities Status? Autism Research, https://doi.org/10.1002/aur.70072 | La qualité de vie des PPA | Les articles regroupés sous cette thématique concernent l’évaluation de la qualité de vie des PPA à l’aide d’indicateurs liés à leur bien-être (p. ex : santé mentale, stress, isolement social, fardeau). Les articles se penchant sur les besoins des PPA pour améliorer leur qualité de vie y sont également inclus. | | ▫️ Demers, C., Gélinas, I., Kerba, J., Lee, K., Bourque, C. J., Lamore, K., Bouchard, I., Meloche, C., Laverdière, C., Curnier, D., Marcil, V., Sultan, S., Sinnett, D., & Higgins, J. (2025). Implementing health promotion interventions in a pediatric oncology setting: A qualitative study among families impacted by cancer and healthcare professionals. Journal of Child Health Care, 13674935251341008. https://doi.org/10.1177/13674935251341008 ▫️ Greve, A. N., Hemager, N., Piché, G., Burton, B. K., Ellersgaard, D., Christiani, C. J., Spang, K. S., Plessen, K. J., Jepsen, J. R. M., Mors, O., Nordentoft, M., & Thorup, A. A. E. (2025). Perceived social support in parents with schizophrenia or bipolar disorder and their co-parents: The Danish high risk and resilience study VIA 7. Schizophrenia Research, 279, 137–143. https://doi.org/10.1016/j.schres.2025.03.001 ▫️ Guarascio, N., Levesque, A., Ogez, D., Marcil, V., Curnier, D., Bélanger, V., Rondeau, É., Péloquin, K., Laverdière, C., Santiago, R., Brossard, J., Vairy, S., Sultan, S., & Team, T. T.-Q. (2025). A Multi-Site Refinement Study of Taking Back Control Together, an Intervention to Support Parents Confronted with Childhood Cancer. Current Oncology, 32(5), 253. https://doi.org/10.3390/curroncol32050253 | L'expérience relationnelle des PPA | Les articles regroupés sous cette thématique étudient les aspects relationnels de la proche aidance. Ils s’intéressent à l’impact des activités de soutien sur les relations entre les membres de la dyade, ainsi que sur celles entre les différent·e·s proches qui composent le réseau de soutien. | | Aucun article ne concerne cette thématique | Pour connaître les étapes méthodologiques d'élaboration de la veille scientifique, consultez la méthodologie. | 
L’Observatoire québécois de la proche aidance est un carrefour de production, de partage et de transfert de connaissances fiables, essentielles et pertinentes pour faire connaître et reconnaître la proche aidance afin de mieux soutenir l’ensemble des personnes concernées. Le mandat pour le développement, l’organisation et le soutien administratif de l’Observatoire a été confié au CIUSSS du Centre-Ouest-de-l'île-de-Montréal. Suivez-nous sur Facebook et LinkedIn ! 
info@observatoireprocheaidance.ca | You are receiving this email because you subscribed to the quarterly scientific watch from the Quebec Observatory on Caregiving. Enjoy your reading! | Caregiver involvement in care and service delivery | This theme refers to the involvement of family members, friends or other significant individuals in the care and support of service users within the health and social services system. It includes caregiver participation in care, services and decision-making; communication and collaboration between caregivers and professionals; specialized training to support caregivers in their role; and systematic consideration of their needs. | | ▫️ Beydoun, S. A., Gagné, C., Neubarth, N. S., Abdallah, J.-P., Kifell, J., & Goldfarb, M. (2025). Patient- and Family-Centered Care Recommendations in Cardiology Guidelines: An AI-Driven Systematic Review. CJC Open, https://doi.org/10.1016/j.cjco.2025.05.017 ▫️ Rennick, J. E., Southall, K., Carnevale, F., Dryden-Palmer, K., Patel, H., Dagenais, M., Buchanan, F., Avery, S., Razack, S., St-Sauveur, I., Cohen, E., Fontela, P., & Law, S. (2025). Using experience-based co-design to explore care experiences and identify practice change priorities for children with medical complexity in the paediatric intensive care unit. BMJ Open, 15(5), e096181. https://doi.org/10.1136/bmjopen-2024-096181 | Navigating care and services | A caregiver's navigation of care and services refers to the process of guiding, coordinating, supporting, and advocating for the health and social services network's resources, usually for the care receiver. | | ▫️ Couture, M., Courteau, J., Brodeur, S., Chiu, Y. M., Courteau, M., Dubé, É., Thomas, N., Lesage, A., Fombonne, É., & Dufour, I. (2025). Male and Female Healthcare Trajectories in Autism: Are There Any Differences Considering Age at Diagnosis and Intellectual or Developmental Disabilities Status? Autism Research, https://doi.org/10.1002/aur.70072 | Caregivers’ quality of life | The articles included under this theme assess the quality of life of caregivers using indicators related to the well-being of this group (e.g. mental health, stress, social isolation, burden). Articles looking at the needs of caregivers in order to improve their quality of life are also included. | | ▫️ Demers, C., Gélinas, I., Kerba, J., Lee, K., Bourque, C. J., Lamore, K., Bouchard, I., Meloche, C., Laverdière, C., Curnier, D., Marcil, V., Sultan, S., Sinnett, D., & Higgins, J. (2025). Implementing health promotion interventions in a pediatric oncology setting: A qualitative study among families impacted by cancer and healthcare professionals. Journal of Child Health Care, 13674935251341008. https://doi.org/10.1177/13674935251341008 ▫️ Greve, A. N., Hemager, N., Piché, G., Burton, B. K., Ellersgaard, D., Christiani, C. J., Spang, K. S., Plessen, K. J., Jepsen, J. R. M., Mors, O., Nordentoft, M., & Thorup, A. A. E. (2025). Perceived social support in parents with schizophrenia or bipolar disorder and their co-parents: The Danish high risk and resilience study VIA 7. Schizophrenia Research, 279, 137–143. https://doi.org/10.1016/j.schres.2025.03.001 ▫️ Guarascio, N., Levesque, A., Ogez, D., Marcil, V., Curnier, D., Bélanger, V., Rondeau, É., Péloquin, K., Laverdière, C., Santiago, R., Brossard, J., Vairy, S., Sultan, S., & Team, T. T.-Q. (2025). A Multi-Site Refinement Study of Taking Back Control Together, an Intervention to Support Parents Confronted with Childhood Cancer. Current Oncology, 32(5), 253. https://doi.org/10.3390/curroncol32050253 | Caregivers’ relational experience | The articles contained under this theme study the relational aspects of caregiving. They look at the impact of support activities on the relationships maintained between the members of the dyad or on the whole support system deployed within the caregiving relationship. | | No articles are related to this topic | To learn more about the methodological steps involved in developing our scientific watch, consult the methodology. |
The Quebec Observatory on Caregiving is a hub for the production, sharing and transfer of reliable, essential and relevant knowledge aimed at raising awareness and fostering the recognition of caregiving, to better support all caregiving stakeholders. The Observatory’s development, coordination and administration has been entrusted to the CIUSSS du Centre-Ouest-de-l'île-de-Montréal. Follow us on Facebook and LinkedIn !
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