Vous recevez ce courriel, car vous vous êtes abonné·e à la veille scientifique trimestrielle de l'Observatoire québécois de la proche aidance. Bonne lecture ! | L'implication des PPA dans les soins et services | Les articles regroupés dans cette thématique concernent la participation des membres de la famille, des ami·e·s ou d'autres personnes significatives dans la prise en charge et l'accompagnement des personnes usagères dans le réseau de la santé et des services sociaux (RSSS). Cela inclut la participation aux soins, aux services et aux prises de décisions, la communication et la collaboration entre les PPA et les professionnel·le·s, les formations adaptées pour soutenir les PPA dans leur rôle, ainsi que la prise en compte de leurs besoins dans le RSSS. | | ▫️ De Montigny, F., René, C., Landry, I., Brødsgaard, A., Polita, N. B., Danford, C. A., Sheppard-Lemoine, D., Ikeda, M., Nascimento, L. C., Somanadhan, S., Alvarenga, W. D. A., & Gervais, C. (2025). “Fathers Are Not Mothers” Nurses’ Experiences of Practicing With Fathers When Providing Care to Their Children: A Qualitative Systematic Review. Journal of Family Nursing, 31(4). https://doi.org/10.1177/10748407251392877 ▫️ Elias, B., & Bogossian, A. (2025). Proposal for a new conceptual framework to guide early intervention professionals in a transcultural context. Frontiers in Public Health, 13. https://doi.org/10.3389/fpubh.2025.1689596 ▫️ Foster, K., Jacob, S., Maybery, D., Reupert, A., McGaw, V., Isobel, S., Dunn, A., Piché, G., Grant, A., McGilloway, S., & Boardman, J. M. (2025). Proof-of-Concept Evaluation of EASE© Family-Focused Education With Undergraduate Nursing Students. International Journal of Mental Health Nursing, 34(6). https://doi.org/10.1111/inm.70201 ▫️ Hartigan, I., Buckley, C., Cornally, N., et coll. (2025). EMTReK Model for Advance Care Planning in Long-Term Care: Qualitative Findings from mySupport Study. Geriatrics, 10(6). https://doi.org/10.3390/geriatrics10060171 ▫️ Hurtubise, K., Gaboury, I., Camden, C., Dostie, R., Beaudoin, A. J., Maltais, D., Reitzel, M., Berbari, J., Couture, M., Morin, M., & Phoenix, M. (2025). Implementation of a Family Centered Telecoaching Intervention for Parents of Children with Motor Difficulties: A Multimethod Process Evaluation. International Journal of Telerehabilitation, 17(2). https://doi.org/10.63144/ijt.2025.6722 ▫️ Udupa, S., Beydoun, S., Kifell, J., Duong, J., Abdallah, J. P., Ohana, M., & Goldfarb, M. (2026). Recruitment strategies for family members in intensive care unit studies: A retrospective observational study. Australian Critical Care, 39(1). https://doi.org/10.1016/j.aucc.2025.101472 ▫️ Yous, M.-L., McCloskey, R., Wickson-Griffiths, A., et coll. (2025). Experiences of care partners and residents with the Long-Term Care Palliative Toolkit during the COVID-19 pandemic: A multiple methods study. Palliative Care and Social Practice, 19. https://doi.org/10.1177/26323524251393344 ▫️ Zhao, Y. N., Blondeau, L.-A., Drouin-Engler, R.-M., Beaudet, L., Côté, M., Damiani, J., Chartrand, D., Léger, V., Nguyen, D. K., Major, P., & Keezer, M. R. (2025). TÉCUM: A New Transition Program for Young People With Epilepsy. Neurology: Clinical Practice, 15(6). https://doi.org/10.1212/CPJ.0000000000200541 | La navigation des soins et services | Les articles regroupés dans cette thématique concernent le processus de navigation, d’orientation, de coordination, de soutien et de défense des droits dans l’accès aux ressources du RSSS, généralement pour la personne aidée. | | Aucun article ne concerne cette thématique | La qualité de vie des PPA | Les articles regroupés sous cette thématique concernent l’évaluation de la qualité de vie des PPA à l’aide d’indicateurs liés à leur bien-être (p. ex : santé mentale, stress, isolement social, fardeau). Les articles se penchant sur les besoins des PPA pour améliorer leur qualité de vie y sont également inclus. | | ▫️ Bissonnette, J., Côté, A., Desameau, P.-G., Cossette, M., Pinard, A. M., Arbour, C., Fortin, G., Ogez, D., & Rainville, P. (2025). Personalized music and hypnosis interventions in palliative and end-of-life care at home: A randomized controlled pilot study. Complementary Therapies in Medicine, 95. https://doi.org/10.1016/j.ctim.2025.103281 ▫️ Kusari, K., Walsh, C. A., Canham, S., Sussman, T., & Mahmood, A. (2025). Aging on the Margins: Intersectional and Postcolonial Insights into Older Migrants’ Experiences of Homelessness. Journal of Gerontological Social Work. https://www.tandfonline.com/doi/abs/10.1080/01634372.2025.2588160 ▫️ Levesque, A., Saravanan, D. P., Perreault, S., Sultan, S., Desjardins, L., Rondeau, É., Wurz, A., Buron, L., Shah, N. B., Hayes, M., Romo, L., Curnier, D., Kern, L., & Caru, M. (2025). Parent and child physical activity as possible predictors of quality of life in pediatric brain tumor patients: A dyadic analysis. Health Psychology and Behavioral Medicine, 13(1). https://doi.org/10.1080/21642850.2025.2580732 ▫️ Martineau, I., Hébert, J., Hamrouni, N., & Girard, D. (2025). The experience of dignity in the context of medical assistance in dying: A phenomenological and hermeneutic study. Death Studies. https://doi.org/10.1080/07481187.2025.2580258 ▫️ Patel, S., Rivard, M., Mello, C., & Sanchez, C. (2025). “We Try to Support Each Other, Stay Strong for Our Children”: Parents’ Experiences of Stress and Co-Parenting in Families Who Have a Child With Autism. Journal of Developmental and Physical Disabilities. https://doi.org/10.1007/s10882-025-10040-w ▫️ Thompson, G., Peacock, S., Kraut, J., Harrison, T., O’Rourke, H. M., Baxter, P., Dubé, V., Swindle, J., & Duggleby, W. (2025). “You Don’t Feel Alone”: Perceptions of the My Tools 4 Care-In Care Web-Based Interactive Toolkit. Global Qualitative Nursing Research, 12. https://doi.org/10.1177/23333936251390491 | L'expérience relationnelle des PPA | Les articles regroupés sous cette thématique étudient les aspects relationnels de la proche aidance. Ils s’intéressent à l’impact des activités de soutien sur les relations entre les membres de la dyade, ainsi que sur celles entre les différent·e·s proches qui composent le réseau de soutien. | | ▫️ Bourdeau, C., Charbonneau, A., Provost, C., Rondeau, É., Laverdière, C., de la Sablonnière, R., & Sultan, S. (2025). L’indépendance à tout prix: Une analyse phénoménologique interprétative d’entretiens narratifs de jeunes survivants à long terme de cancer pédiatrique. Pratiques Psychologiques. https://doi.org/10.1016/j.prps.2025.09.001 ▫️ Ertekin, Z., Leblanc, C.-A., Périard-Larivée, D., Dubois-Comtois, K., Stipanicic, A., Cyr, C., Couture, M. M., & Bussières, È.-L. (2026). Being the mother of an autistic child: A comprehensive study of mother–child relationships. Research in Autism, 130. https://doi.org/10.1016/j.reia.2025.202753 | Pour connaître les étapes méthodologiques d'élaboration de la veille scientifique, consultez la méthodologie. | 
L’Observatoire québécois de la proche aidance est un carrefour de production, de partage et de transfert de connaissances fiables, essentielles et pertinentes pour faire connaître et reconnaître la proche aidance afin de mieux soutenir l’ensemble des personnes concernées. Le mandat pour le développement, l’organisation et le soutien administratif de l’Observatoire a été confié au CIUSSS du Centre-Ouest-de-l'île-de-Montréal. Suivez-nous sur Facebook et LinkedIn ! 
info@observatoireprocheaidance.ca | You are receiving this email because you subscribed to the quarterly scientific watch from the Quebec Observatory on Caregiving. Enjoy your reading! | Caregiver involvement in care and service delivery | This theme refers to the involvement of family members, friends or other significant individuals in the care and support of service users within the health and social services system. It includes caregiver participation in care, services and decision-making; communication and collaboration between caregivers and professionals; specialized training to support caregivers in their role; and systematic consideration of their needs. | | ▫️ De Montigny, F., René, C., Landry, I., Brødsgaard, A., Polita, N. B., Danford, C. A., Sheppard-Lemoine, D., Ikeda, M., Nascimento, L. C., Somanadhan, S., Alvarenga, W. D. A., & Gervais, C. (2025). “Fathers Are Not Mothers” Nurses’ Experiences of Practicing With Fathers When Providing Care to Their Children: A Qualitative Systematic Review. Journal of Family Nursing, 31(4). https://doi.org/10.1177/10748407251392877 ▫️ Elias, B., & Bogossian, A. (2025). Proposal for a new conceptual framework to guide early intervention professionals in a transcultural context. Frontiers in Public Health, 13. https://doi.org/10.3389/fpubh.2025.1689596 ▫️ Foster, K., Jacob, S., Maybery, D., Reupert, A., McGaw, V., Isobel, S., Dunn, A., Piché, G., Grant, A., McGilloway, S., & Boardman, J. M. (2025). Proof-of-Concept Evaluation of EASE© Family-Focused Education With Undergraduate Nursing Students. International Journal of Mental Health Nursing, 34(6). https://doi.org/10.1111/inm.70201 ▫️ Hartigan, I., Buckley, C., Cornally, N., and al. (2025). EMTReK Model for Advance Care Planning in Long-Term Care: Qualitative Findings from mySupport Study. Geriatrics, 10(6). https://doi.org/10.3390/geriatrics10060171 ▫️ Hurtubise, K., Gaboury, I., Camden, C., Dostie, R., Beaudoin, A. J., Maltais, D., Reitzel, M., Berbari, J., Couture, M., Morin, M., & Phoenix, M. (2025). Implementation of a Family Centered Telecoaching Intervention for Parents of Children with Motor Difficulties: A Multimethod Process Evaluation. International Journal of Telerehabilitation, 17(2). https://doi.org/10.63144/ijt.2025.6722 ▫️ Udupa, S., Beydoun, S., Kifell, J., Duong, J., Abdallah, J. P., Ohana, M., & Goldfarb, M. (2026). Recruitment strategies for family members in intensive care unit studies: A retrospective observational study. Australian Critical Care, 39(1). https://doi.org/10.1016/j.aucc.2025.101472 ▫️ Yous, M.-L., McCloskey, R., Wickson-Griffiths, A., and al. (2025). Experiences of care partners and residents with the Long-Term Care Palliative Toolkit during the COVID-19 pandemic: A multiple methods study. Palliative Care and Social Practice, 19. https://doi.org/10.1177/26323524251393344 ▫️ Zhao, Y. N., Blondeau, L.-A., Drouin-Engler, R.-M., Beaudet, L., Côté, M., Damiani, J., Chartrand, D., Léger, V., Nguyen, D. K., Major, P., & Keezer, M. R. (2025). TÉCUM: A New Transition Program for Young People With Epilepsy. Neurology: Clinical Practice, 15(6). https://doi.org/10.1212/CPJ.0000000000200541 | Navigating care and services | A caregiver's navigation of care and services refers to the process of guiding, coordinating, supporting, and advocating for the health and social services network's resources, usually for the care receiver. | | No articles are related to this topic | Caregivers’ quality of life | The articles included under this theme assess the quality of life of caregivers using indicators related to the well-being of this group (e.g. mental health, stress, social isolation, burden). Articles looking at the needs of caregivers in order to improve their quality of life are also included. | | ▫️ Bissonnette, J., Côté, A., Desameau, P.-G., Cossette, M., Pinard, A. M., Arbour, C., Fortin, G., Ogez, D., & Rainville, P. (2025). Personalized music and hypnosis interventions in palliative and end-of-life care at home: A randomized controlled pilot study. Complementary Therapies in Medicine, 95. https://doi.org/10.1016/j.ctim.2025.103281 ▫️ Kusari, K., Walsh, C. A., Canham, S., Sussman, T., & Mahmood, A. (2025). Aging on the Margins: Intersectional and Postcolonial Insights into Older Migrants’ Experiences of Homelessness. Journal of Gerontological Social Work. https://www.tandfonline.com/doi/abs/10.1080/01634372.2025.2588160 ▫️ Levesque, A., Saravanan, D. P., Perreault, S., Sultan, S., Desjardins, L., Rondeau, É., Wurz, A., Buron, L., Shah, N. B., Hayes, M., Romo, L., Curnier, D., Kern, L., & Caru, M. (2025). Parent and child physical activity as possible predictors of quality of life in pediatric brain tumor patients: A dyadic analysis. Health Psychology and Behavioral Medicine, 13(1). https://doi.org/10.1080/21642850.2025.2580732 ▫️ Martineau, I., Hébert, J., Hamrouni, N., & Girard, D. (2025). The experience of dignity in the context of medical assistance in dying: A phenomenological and hermeneutic study. Death Studies. https://doi.org/10.1080/07481187.2025.2580258 ▫️ Patel, S., Rivard, M., Mello, C., & Sanchez, C. (2025). “We Try to Support Each Other, Stay Strong for Our Children”: Parents’ Experiences of Stress and Co-Parenting in Families Who Have a Child With Autism. Journal of Developmental and Physical Disabilities. https://doi.org/10.1007/s10882-025-10040-w ▫️ Thompson, G., Peacock, S., Kraut, J., Harrison, T., O’Rourke, H. M., Baxter, P., Dubé, V., Swindle, J., & Duggleby, W. (2025). “You Don’t Feel Alone”: Perceptions of the My Tools 4 Care-In Care Web-Based Interactive Toolkit. Global Qualitative Nursing Research, 12. https://doi.org/10.1177/23333936251390491 | Caregivers’ relational experience | The articles contained under this theme study the relational aspects of caregiving. They look at the impact of support activities on the relationships maintained between the members of the dyad or on the whole support system deployed within the caregiving relationship. | | ▫️ Bourdeau, C., Charbonneau, A., Provost, C., Rondeau, É., Laverdière, C., de la Sablonnière, R., & Sultan, S. (2025). L’indépendance à tout prix: Une analyse phénoménologique interprétative d’entretiens narratifs de jeunes survivants à long terme de cancer pédiatrique. Pratiques Psychologiques. https://doi.org/10.1016/j.prps.2025.09.001 ▫️ Ertekin, Z., Leblanc, C.-A., Périard-Larivée, D., Dubois-Comtois, K., Stipanicic, A., Cyr, C., Couture, M. M., & Bussières, È.-L. (2026). Being the mother of an autistic child: A comprehensive study of mother–child relationships. Research in Autism, 130. https://doi.org/10.1016/j.reia.2025.202753 | To learn more about the methodological steps involved in developing our scientific watch, consult the methodology. |
The Quebec Observatory on Caregiving is a hub for the production, sharing and transfer of reliable, essential and relevant knowledge aimed at raising awareness and fostering the recognition of caregiving, to better support all caregiving stakeholders. The Observatory’s development, coordination and administration has been entrusted to the CIUSSS du Centre-Ouest-de-l'île-de-Montréal. Follow us on Facebook and LinkedIn !
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