Data Points Newsletter logo, HDRN Canada, June 2025, featuring a graphic of an upward data trend.

What's Up @ HDRN Canada?

No significant visuals. Text reads: Accelerating Clinical Trials (ACT). HDRN Canada clinical trials.

Funding awarded to use #AdminData in clinical trials

The ACT Consortium/HDRN Canada Clinical Trials Working Group has awarded funding to six researchers from across Canada for capacity-building projects to advance the novel use of administrative data in the planning, conduct or evaluation of clinical trials. Stay tuned for more about the recipients and their projects!

Upcoming Events

News from Across the Network

No significant visuals. Logo for Accelerating Clinical Trials.

New tool to accelerate clinical trials

Canada's research community has a new tool to accelerate clinical trials! CanReview is a pan-Canadian system supported by the Accelerating Clinical Trials (ACT) Consortium to enable a single research ethics for multi-site clinical trials to improve study start-up times and equitable access to trial participation. Get started!

No significant visuals. Text reads: Better data. Better decisions. Healthier Canadians. Logo for Canadian Institute for Health Information.

Health Data Stewardship Principles open review

CIHI is inviting open review of its Health Data Stewardship Principles, developed to help build consensus around safe and ethical practices for health data sharing, access and use, and provide guidance in a rapidly evolving health data landscape. Submit feedback, insights and suggestions on these principles until June 18.

Text reads: Data Discovery Better Health. Logo for IC/ES.

Ontario long-term care research shows stark outcomes

A new study from ICES shows that a significant number of long-term care residents experience states of severe cognitive and physical impairment after admission, leaving them unable to make personal decisions and unable to communicate with staff or loved ones, indicating the need for quality of life discussions.

Health care waiting room with diverse patients and health care workers. Unité de Soutien SSA Québec is logo at bottom right.

The power of Patient Reported Outcome Measures

What patients share with their care team can make all the difference. PROMs – Patient Reported Outcome Measures – are extremely useful but can raise patient questions and concerns. Unité de soutien SSA Québec has launched a microsite that explains what PROMs are and why they are useful, with explanations, testimonials and podcasts.

No significant visuals. Statistics Canada logo.

New insights into deaths across Canada

The Canadian Coroner and Medical Examiner Database offers standardized data from all provinces and territories on the causes and circumstances of death. This resource from Statistics Canada facilitates the identification and characterization of emerging and known safety hazards to help reduce preventable deaths among Canadians.

In Case You Missed It!

Anne Hayes, a smiling woman with short blonde hair wearing a green cardigan. Text reads: HDR Alliance: Collectively Advancing World-Leading Data Use. Logo for Health Data Research Network Canada at bottom.

Meet the Health Data Research Alliance!

HDRN Canada's Director of Partnerships Anne Hayes introduces the Health Data Research (HDR) Alliance, a network of HDRN Canada partners that work collectively to foster Canada's health data ecosystem and strengthen world-leading health data policies and practices.

WATCH

Headshots of four diverse speakers. Text reads: The Future of Health Series: Can Health Data Save Lives?

Unlocking the Power of Health Data

Julia Burt, HDRN Canada’s Public Engagement Lead, is featured on this episode of the Future Economy Podcast, discussing the need for institutions to demonstrate trustworthiness through transparency and engagement to build public trust in how health data are collected and used.

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