Community attitudes on health data use in research

HDRN Canada and PHRN Australia will co-host an interactive, virtual workshop comparing and contrasting community attitudes towards the use of health data in research in Canada and Australia. Register to join us on June 18 from 12:00 - 2:00 p.m. ET.

Health Data for All of Us - that's a wrap!

HDRN Canada's second annual public forum, held in Montreal last month, brought together a dynamic group of researchers, patient partners, students and policymakers to talk about the use of health data in Canada. Check out the event recordings featuring our incredible speakers!

HDRN Canada at ICES Research Forum 2024

HDRN Canada was thrilled to present a session at ICES Research Forum 2024. Our lineup of nine speakers provided an overview of how researchers can work with HDRN Canada, with a focus on partnerships, our working groups and teams, and the work of member data centres.

NEWS: Including disability in administrative data 

The failure to track disability in population level research contributes to health inequities. Learn how we can improve the measurement of disability in administrative health data research in our recent story, featuring ICES adjunct scientists Dr. Hilary K. Brown and Dr. Yona Lunsky. 

Homelessness & hospital use

New data from the Canadian Institute for Health Information (CIHI) found that hospitalizations for patients experiencing homelessness in Canada in 2022-2023 were twice as long as the national average and cost twice as much. 

New CIHR funding for CLSA research projects 

33 research teams across Canada have received a combined total of $2.3 million in funding from the Canadian Institutes of Health Research to support analyses of longitudinal data from the Canadian Longitudinal Study on Aging.

Hotıì ts’eeda launches new online training support 

Hotıì ts’eeda has launched a new online training support initiative available to permanent NWT residents during the 2024-2025 fiscal year. The online courses available include the Fundamentals of OCAP® and Truth and Reconciliation for Evaluators. 

Opioid use disorder and palliative care

A new study using ICES data found that people with opioid use disorder were less likely to receive palliative care. The findings highlight the importance of training for health care providers to better support patients with opioid use disorder at the end of their lives. 

Funding opportunity for patient-oriented research 

NL SUPPORT is offering a new funding opportunity for patient-oriented research in the areas of lab-based/basic science research and community/social sector research. Apply for the Patient-Oriented Research Development Award by May 24. 

Health trajectories of children born at preterm 

Population Data BC will support data linkage for a new project aimed at filling knowledge gaps about the long-term prognoses for infants with prenatal factors and severe neonatal morbidity that put them at risk for neurological and psychiatric disorders in childhood and early adulthood.

Oral health care in Canada

Substantial disparities remain in access to oral health care in Canada. Check out two recent reports by Statistics Canada on how dental insurance, income and sociodemographic factors affect the use of oral health care by adults and by children and youth.

Interactive site on patient partnership in research 

What can you expect as a patient or citizen when you become a research partner? Unité de soutien SSA Québec has created an interactive microsite with resources and testimonials to inform potential partners about what their involvement in research could look like.  

Synthetic data from administrative health records

In this article for the International Journal of Population Data Science, researchers, including HDRN Canada Lead Dr. Lisa Lix, compare synthetic administrative health records generated using two methods to real world records for drug and effectiveness studies.