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What's Up @ HDRN Canada?

No significant visual. Text reads: Check out HDRN Canada at #IPDLN 2024! Presentations! Workshops! Posters! September 15-19. 2024 IPDLN Conference Adapting to a Changing World logo at bottom left. Health Data Research Network Canada logo at bottom right.

HDRN Canada at IPDLN 2024

The 2024 International Population Data Linkage Network (IPDNL) Conference features incredible workshops, sessions and posters presented by HDRN Canada's team! Explore the conference program to discover opportunities to connect with us and learn about our work. 

Visuals of three animated doctors. Text reads: The HDRN Canada Pragmatic Trials Training Program is now online!

Faster & more efficient pragmatic clinical trials

The HDRN Canada Pragmatic Trials Training program launched in July, bringing a unique opportunity for researchers to learn about clinical trial design and implementation. The two-year pan-Canadian program aims to build Canada’s capacity for pragmatic clinical trials.

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HDRN Canada announces new partnership with CHIMA

HDRN Canada and the Canadian Health Information Management Association (CHIMA) have announced a new partnership, which opens up exciting opportunities to work together towards improved health data literacy and knowledge sharing.

A visual of a young smiling woman with spectacles. Text reads: Profile. Trinity Lowthian. Public Advisory Council. Health Data Research Network Canada logo at bottom left.

PAC Profile: Trinity Lowthian

Meet Trinity Lowthian, Paralympic athlete and member of HDRN Canada's Public Advisory Council, feature in this new profile series. A University of Ottawa student with an interest in health data, Trinity represented Canada in wheelchair fencing at the Paris 2024 Paralympics. 

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Big IDEAs About Health Data Speaker Series 2024/25

Announcing the launch of our Big IDEAs about Health Data Speaker Series 2024-2025 speaker lineup, featuring an array of experts discussing the intersections between administrative data and homelessness, anti-racism, 2S/LGBTQQIA+ and community.

Upcoming Events

A visual of a smiling woman with spectacles. Text reads: CLSA Webinar Series. Casting light on the genetics of age-related hearing loss: insights from the Canadian Longitudinal Study on Aging. September 26, 2024 | 12 PM ET. Canadian Longitudinal Study on Aging (CLSA) logo at bottom right.

The Genetics of Age-related Hearing Loss  SEPTEMBER 26 | 12:00 - 1:00 p.m. ET

Learn about the genetics of age-related hearing loss in this webinar outlining insights gained using genomic and audiologic data from the Canadian Longitudinal Study on Aging (CLSA), providing exciting updates on the genes identified. 


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No significant visual. Text reads: October 21-22, 2024 | Vancouver, British Columbia. Pinnacle Hotel Harbourfront. 2024 Pan-Canadian Conference on Health Information. Presented by CHIMA. Register Today.

2024 Pan-Canadian Conference on Health Information | OCTOBER 21-22 | VANCOUVER

Registration is open for the Pan-Canadian Conference on Health Information, an exciting two-day event that brings together experts in health care, technology and data discussing the future of the health information profession.

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No significant visual. Text reads: Registration is open. Maritime Health Research Summit. Moving the Dial on Learning Health Systems. October 24, 2024. Delta Hotel, Dartmouth. QR code linking to mssu.ca/summit.

2024 Maritime Health Research Summit | OCTOBER 24 | 8:00 a.m. - 5:30 p.m. AT

Health care leaders and health researchers come together to bridge the gap between research and clinical practice at this one-day conference, hosted by MSSU and featuring presentations by HDRN Canada's Katelyn Frizzell and Robyn Kidd.

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No significant visual. Text reads: 2024 Health Data User Conference. November 14, 2024. Ottawa, Ontario. Statistics Canada logo at bottom left. Canada at bottom right.

2024 Health Data User Conference | NOVEMBER 14 | 8:00 a.m. - 4:30 p.m. ET

Statistics Canada and the Public Health Agency of Canada will host the 2024 Health Data User Conference at the Canadian War Museum in Ottawa. This one-day event explores how health data are used to tackle emerging health issues.

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News from Across the Network

No significant visual. Text reads: New available. NACRS emergency department data. CIHI logo at bottom right.

New data available on emergency department visits

The Canadian Institute on Health Information (CIHI) has made newly refreshed data on emergency department visits in Canada available. Explore data tables on emergency department visits by triage level, reason for visit, length of stay and more.

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HRDP-SK supports project-specific data linkages

Research teams can now request to link data from the Health Research Data Platform – Saskatchewan (HRDP-SK), in addition to accessing existing datasets. This process builds significant capacity for research teams to include Saskatchewan data in their projects.

No significant visual. Text reads: ICES logo at top right corner. New study. Patients report high information coordination between rostered primary care physicians & specialists: A cross-sectional study.

Coordination between primary care & specialists

A study using linked administrative data from ICES examined patient experience of information coordination between their primary care physician and specialists, finding that patients reported high information coordination between health care providers. 

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Statistics on sexual & gender minorities in Quebec

The Institut de la statistique du Québec has released a new collection of statistics on sexual and gender minorities in Quebec, which includes information on demographics, education, health and well-being, social and community life, and victimization.

An animated  visual of a woman carrying a child. Text reads: Manitoba Centre for Health Policy report. Infant Rates of Child Protective Services Contact and Termination of Parental Rights by First Nations Status. First Nations Infants and Child and Family Services Involvement A Multiyear Population-Based Study Into Rates of CFS Involvement and Termination of Parental Rights Amongst First Nations Infants in Manitoba.

CFS involvement with First Nations infants in Manitoba

A study jointly led by the Assembly of Manitoba Chiefs (AMC) First Nations Family Advocate Office (FNFAO) and Manitoba Centre for Health Policy revealed that First Nations infants in Manitoba have an exceptionally high rate of Child and Family Services contact.

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New cancer data from Statistics Canada

Discover new data on cancer in Canada by exploring two studies produced in collaboration with Statistics Canada that provide insight into breast cancer trends in young women and rates of new cancers and cancer deaths in Canada for 2024

3 icons depicting physical, mental and social health. Unité de Soutien SSA Quebec logo at top left corner.

Measuring health-related quality of life with 13-MD

How can we measure health-related quality of life by considering physical, mental and social health in a balanced way? Read about the linguistic validation of the 13-MD tool, published in partnership with Unité de soutien SSA Québec.

In the Media

A visual of a smiling man. Text reads: In the Media. Jean-Francois Ethier. Co-Director, Groupe de recherche interdisciplinaire en informatique de la santé (GRIIS) Featured on: Radio-Canada. Health Data Research Network Logo at bottom right.

Causes of misdiagnosis and internal medicine

HDRN Canada Executive Member Dr. Jean-François Ethier was interviewed by Radio-Canada about the reasons someone might experience a misdiagnosis and the ways that people with complex cases who struggle to find a diagnosis will interact with internal medicine.

In Case You Missed It!

Discussion session logo at top left corner. Two visuals of smiling people. Text reads: Canada's Vision for Modern, Connected Care. Health Data Research Network Canada logo at bottom right.

Canada's Vision for Modern, Connected Care

Check out the recording from our last Discussion Session featuring Patrick Lagioia and Elizabeth Toller discussing progress made towards implementing key priorities of the Working Together to Improve Health Care for Canadians plan.

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3 visuals of smiling young people. Text reads: Prioritizing Disability Inclusion in Health Research. CHILD-BRIGHT Network logo at top right. With youth research partners Tommy Akinnawonu, Kelsey Seguin, and Logan Wong

Disability Inclusion in Health Research

Learn about the inclusion of people with disabilities in health research focused on equity, diversity, inclusion, decolonization and Indigenization in this webinar hosted by CHILD-BRIGHT National Youth Advocacy Council.  

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