Vous recevez ce courriel, car vous vous êtes abonné·e à la veille scientifique trimestrielle de l'Observatoire québécois de la proche aidance. Bonne lecture ! | L'implication des PPA dans les soins et services | Les articles inclut dans cette thématique étudient la participation des membres de la famille, des ami·e·s ou d'autres personnes significatives dans la prise en charge et l'accompagnement des personnes usagères dans le réseau de la santé et des services sociaux (RSSS). Cela inclut la participation aux soins, aux services et aux prises de décisions, la communication et la collaboration entre les PPA et les professionnel·le·s, les formations adaptées pour soutenir les PPA dans leur rôle, ainsi que la prise en compte de leurs besoins dans le RSSS. | | ▫️ Abboud, A., Jutras, R., Rollin, C., Norton, L., Blain-Moraes, S., & Duclos, C. (2026). Factors influencing withdrawal of life-sustaining treatments in patients with severe acquired brain injuries: A scoping review. Frontiers in Neurology, 17. https://doi.org/10.3389/fneur.2026.1755086 ▫️ Debay, V., Moghrabi, M., Barriga, S., & Goldfarb, M. (2026). Characteristics of family participants in randomized ICU clinical trials: A systematic review. Intensive and Critical Care Nursing, 93. https://doi.org/10.1016/j.iccn.2026.104337 ▫️ Debay, V., Kifell, J., Somech, J., & Goldfarb, M. (2026). Family engagement in the cardiac ICU: Insights from the FAME study. Journal of Critical Care, 93. https://doi.org/10.1016/j.jcrc.2026.155481 ▫️ Ducharme, R., Jubinville, W., Bottari, C., Salazar, A. P., Thibault, G., Wagner, V., Lamontagne, M.-È., Pan, H., & Roy, L. (2026). Preventing homelessness in adults with acquired brain injury: A mixed-methods rapid review. Annals of Physical and Rehabilitation Medicine, 69(5). https://doi.org/10.1016/j.rehab.2026.102105 ▫️ Hurtubise, K., Gaboury, I., Phoenix, M., Baillargeon, J.-P., Couture, M., Morin, M., Battista, M.-C., Schuster, T., Poder, T. G., Berbari, J., Maltais, D., Zwicker, J. G., Tousignant, M., & Camden, C. (2026). Outcome evaluation of the Web-based early intervention for children with motor difficulties aged 3–8 years old using multimodal rehabilitation: Results of a family-centered pragmatic randomized controlled study. Disability and Rehabilitation. https://doi.org/10.1080/09638288.2026.2651725 ▫️ Pratte, G., Gagnon, M., Guertin, M., Couture, M., Camden, C., & Beaudoin, A. J. (2026). Barriers and Facilitators Influencing the Implementation of a New Community-Based Occupational Therapy Service for Preschoolers. Physical & Occupational Therapy In Pediatrics. https://doi.org/10.1080/01942638.2026.2623841 | La navigation des soins et services | Les articles inclus dans cette thématique étudient le processus de navigation, d’orientation, de coordination, de soutien et de défense des droits dans l’accès aux ressources du RSSS, généralement pour la personne aidée. | | Aucun article ne concerne cette thématique | La qualité de vie des PPA | Les articles inclus dans cette thématique évaluent la qualité de vie des PPA à l’aide d’indicateurs liés à leur bien-être (p. ex : santé mentale, stress, isolement social, fardeau). Les articles se penchant sur les besoins des PPA pour améliorer leur qualité de vie y sont également inclus. | | ▫️ Jasmin, M., Piché, G., Villatte, A., Reupert, A., Clément, M.-È., Müller, A. D., Fournier-Marceau, M., Maybery, D., Morin, M.-H., & Richard-Devantoy, S. (2026). Exploring psychiatrists’ perspectives on supporting parents with mental health Challenges: A mixed-methods study. PLoS One, 21(2). https://doi.org/10.1371/journal.pone.0342923 ▫️ Koestner, S., Brotman, S., Pacheco, L., Mastrostefano, A., Deshaies, M.-H., Demers, C., Dickson, D., & Ragot, S. (2025). Autonomy as Conveyed by Food Environments: Nourishment vs Restriction Among Neurodiverse Older Adults. Innovation in Aging, 9. https://doi.org/10.1093/geroni/igaf122.2325 ▫️ Li, Z., Vedel, I., & Quesnel-Vallée, A. (2026). Social disparities in associations between informal caregiving intensity and mental health: Evidence from the Canadian Longitudinal Study on Aging. Social Science & Medicine, 398. https://doi.org/10.1016/j.socscimed.2026.119188 ▫️ Rivard, M., Mestari, Z., Morin, D., Hastings, R., Coulombe, P., Mello, C., & Forget, J. (2026). Patterns of Behavioral and Emotional Problems in Young Children With Developmental Disabilities: Cluster Analysis and Longitudinal Follow-Up. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-026-07280-w ▫️ Wallach, I., Beauchamp, J., Sussman, T., Laplante, A., & Durivage, P. (2026). Sexuality in Older Adults Receiving Palliative Care: A Fundamental Dimension through the End of Life. OBM Geriatrics, 10(1). https://doi.org/10.21926/obm.geriatr.2601335 | L'expérience relationnelle des PPA | Les articles inclut dans cette thématique étudient les aspects relationnels de la proche aidance. Ils s’intéressent à l’impact des activités de soutien sur les relations entre les membres de la dyade, ainsi que sur celles entre les différent·e·s proches qui composent le réseau de soutien. | | ▫️ Bourdeau, C., Charbonneau, A., Provost, C., Rondeau, É., Laverdière, C., de la Sablonnière, R., & Sultan, S. (2026). How the support of others helped me become who I Am: An interpretative phenomenological analysis of narrative interviews with young adults treated for childhood leukemia. Psychology & Health. https://doi.org/10.1080/08870446.2026.2641187 | Pour connaître les étapes méthodologiques d'élaboration de la veille scientifique, consultez la méthodologie. | 
L’Observatoire québécois de la proche aidance est un carrefour de production, de partage et de transfert de connaissances fiables, essentielles et pertinentes pour faire connaître et reconnaître la proche aidance afin de mieux soutenir l’ensemble des personnes concernées. Le mandat pour le développement, l’organisation et le soutien administratif de l’Observatoire a été confié au CIUSSS du Centre-Ouest-de-l'île-de-Montréal. Suivez-nous sur Facebook et LinkedIn ! 
info@observatoireprocheaidance.ca | You are receiving this email because you subscribed to the quarterly scientific watch from the Quebec Observatory on Caregiving. Enjoy your reading! | Caregiver involvement in care and service delivery | This theme refers to the involvement of family members, friends or other significant individuals in the care and support of service users within the health and social services system. It includes caregiver participation in care, services and decision-making; communication and collaboration between caregivers and professionals; specialized training to support caregivers in their role; and systematic consideration of their needs. | | ▫️ Abboud, A., Jutras, R., Rollin, C., Norton, L., Blain-Moraes, S., & Duclos, C. (2026). Factors influencing withdrawal of life-sustaining treatments in patients with severe acquired brain injuries: A scoping review. Frontiers in Neurology, 17. https://doi.org/10.3389/fneur.2026.1755086 ▫️ Debay, V., Moghrabi, M., Barriga, S., & Goldfarb, M. (2026). Characteristics of family participants in randomized ICU clinical trials: A systematic review. Intensive and Critical Care Nursing, 93. https://doi.org/10.1016/j.iccn.2026.104337 ▫️ Debay, V., Kifell, J., Somech, J., & Goldfarb, M. (2026). Family engagement in the cardiac ICU: Insights from the FAME study. Journal of Critical Care, 93. https://doi.org/10.1016/j.jcrc.2026.155481 ▫️ Ducharme, R., Jubinville, W., Bottari, C., Salazar, A. P., Thibault, G., Wagner, V., Lamontagne, M.-È., Pan, H., & Roy, L. (2026). Preventing homelessness in adults with acquired brain injury: A mixed-methods rapid review. Annals of Physical and Rehabilitation Medicine, 69(5). https://doi.org/10.1016/j.rehab.2026.102105 ▫️ Hurtubise, K., Gaboury, I., Phoenix, M., Baillargeon, J.-P., Couture, M., Morin, M., Battista, M.-C., Schuster, T., Poder, T. G., Berbari, J., Maltais, D., Zwicker, J. G., Tousignant, M., & Camden, C. (2026). Outcome evaluation of the Web-based early intervention for children with motor difficulties aged 3–8 years old using multimodal rehabilitation: Results of a family-centered pragmatic randomized controlled study. Disability and Rehabilitation. https://doi.org/10.1080/09638288.2026.2651725 ▫️ Pratte, G., Gagnon, M., Guertin, M., Couture, M., Camden, C., & Beaudoin, A. J. (2026). Barriers and Facilitators Influencing the Implementation of a New Community-Based Occupational Therapy Service for Preschoolers. Physical & Occupational Therapy In Pediatrics. https://doi.org/10.1080/01942638.2026.2623841 | Navigating care and services | A caregiver's navigation of care and services refers to the process of guiding, coordinating, supporting, and advocating for the health and social services network's resources, usually for the care receiver. | | No articles are related to this topic | Caregivers’ quality of life | The articles included under this theme assess the quality of life of caregivers using indicators related to the well-being of this group (e.g. mental health, stress, social isolation, burden). Articles looking at the needs of caregivers in order to improve their quality of life are also included. | | ▫️ Jasmin, M., Piché, G., Villatte, A., Reupert, A., Clément, M.-È., Müller, A. D., Fournier-Marceau, M., Maybery, D., Morin, M.-H., & Richard-Devantoy, S. (2026). Exploring psychiatrists’ perspectives on supporting parents with mental health Challenges: A mixed-methods study. PLoS One, 21(2). https://doi.org/10.1371/journal.pone.0342923 ▫️ Koestner, S., Brotman, S., Pacheco, L., Mastrostefano, A., Deshaies, M.-H., Demers, C., Dickson, D., & Ragot, S. (2025). Autonomy as Conveyed by Food Environments: Nourishment vs Restriction Among Neurodiverse Older Adults. Innovation in Aging, 9. https://doi.org/10.1093/geroni/igaf122.2325 ▫️ Li, Z., Vedel, I., & Quesnel-Vallée, A. (2026). Social disparities in associations between informal caregiving intensity and mental health: Evidence from the Canadian Longitudinal Study on Aging. Social Science & Medicine, 398. https://doi.org/10.1016/j.socscimed.2026.119188 ▫️ Rivard, M., Mestari, Z., Morin, D., Hastings, R., Coulombe, P., Mello, C., & Forget, J. (2026). Patterns of Behavioral and Emotional Problems in Young Children With Developmental Disabilities: Cluster Analysis and Longitudinal Follow-Up. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-026-07280-w ▫️ Wallach, I., Beauchamp, J., Sussman, T., Laplante, A., & Durivage, P. (2026). Sexuality in Older Adults Receiving Palliative Care: A Fundamental Dimension through the End of Life. OBM Geriatrics, 10(1). https://doi.org/10.21926/obm.geriatr.2601335 | Caregivers’ relational experience | The articles contained under this theme study the relational aspects of caregiving. They look at the impact of support activities on the relationships maintained between the members of the dyad or on the whole support system deployed within the caregiving relationship. | | ▫️ Bourdeau, C., Charbonneau, A., Provost, C., Rondeau, É., Laverdière, C., de la Sablonnière, R., & Sultan, S. (2026). How the support of others helped me become who I Am: An interpretative phenomenological analysis of narrative interviews with young adults treated for childhood leukemia. Psychology & Health. https://doi.org/10.1080/08870446.2026.2641187 | To learn more about the methodological steps involved in developing our scientific watch, consult the methodology. |
The Quebec Observatory on Caregiving is a hub for the production, sharing and transfer of reliable, essential and relevant knowledge aimed at raising awareness and fostering the recognition of caregiving, to better support all caregiving stakeholders. The Observatory’s development, coordination and administration has been entrusted to the CIUSSS du Centre-Ouest-de-l'île-de-Montréal. Follow us on Facebook and LinkedIn !
info@observatoireprocheaidance.ca | | | | |
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