Health Data Research Network Canada Logo

What's Up @ HDRN Canada?

No significant visual. Text reads: Health Data for All of Us A Public Dialogue on AI in Health April 29.Health Data Research Network Canada logo at bottom.

Full lineup announced! Health Data for All of Us 2025

Health Data for All of Us: A Public Dialogue on AI in Health is coming up on April 29! Explore our exciting lineup of speakers and sessions, including our fantastic keynote panel, which will represent the patient partner, researcher and clinician perspectives on AI in health. Register now!

Dr. Jennifer Walker, an indigenous woman with glasses. Text reads: Congratulations HDRN Canada Executive Member Dr. Jennifer Walker awarded the New Frontiers in Research Fund. HDRN Canada logo at bottom.

Dr. Jennifer Walker awarded $24M in funding

HDRN Canada Executive member Dr. Jennifer Walker received $24 million in federal government funding to decolonize brain health assessment in Indigenous communities and support Indigenous-centred brain health assessment, education and supportive care.

No significant visual. Text reads: Public Engagement on Health Data Toolkit.

Public Engagement on Health Data Toolkit released

HDRN Canada's Public Advisory Council is featured in the Public Engagement on Health Data Toolkit, which aims to foster trust and health data literacy through supporting high-quality public engagement by government institutions and community groups around health data.

Chris Allison a white man wearing a white hat. Text reads: News Story Chris Allison Federating Data in Canadian Public Health. Health Data Research Network Canada logo.

Federating data in Canadian public health

How can federated data support a new approach to health data management in public health? Read about a vision for a federated health data system in this news story featuring former Chief Data Officer for the Public Health Agency of Canada, Chris Allison.

Upcoming Events

Erik Youngson, a white man with short hair. Dr. Scott Garrison, a white man with short hair and glasses. Text reads: Accessing Data through DASH Researcher Impact Story May 7. Health Data Research Network Canada logo at bottom.

Accessing Data through DASH: Researcher Impact Story | MAY 7 | 10:00 a.m. PT

Learn about how accessing data from multiple provinces supported the largest randomized trial ever conducted by Canadian primary care in this webinar featuring DASH researcher Dr. Scott Garrison and Erik Youngson.

REGISTER

No significant visual. Text reads: 10 years Annual Conference on Patient-Oriented Research NorthWest SPOR Collaborative Forum .

NorthWest SPOR Collaborative Forum
MAY 12-14 | CALGARY

Hosted by AbSPORU, the Northwest SPOR Collaborative Forum on Patient-Oriented Research explores partnership, innovation and impact in patient-oriented research. Register to attend online or in-person in Calgary before May 5.

REGISTER

No significant visuals. Text reads: CRDCN 2025: 25 Year of partnership for research. Canadian Research Data Centre Network logo centred.

Plenaries Announced! CRDCN 2025
MAY 13 - 14 | OTTAWA

HDRN Canada Executive member Dr. Ted McDonald will present at the CRDCN's annual conference, this year celebrating 25 years of partnership with Statistics Canada and other collaborating institutions.


REGISTER

Dominique Legacy, an Indigenous woman with long hair. Laura Ferreira-Legere, a white woman with long brown hair. Text reads: Big IDEAs About Health Data Indigenous Data Governance Principles & Race-Related Data | MAY 22. Health Data Research Network Canada logo at bottom.

Indigenous Data Governance Principles & Race-Related Data | MAY 22 | 10:00 a.m. PT

In the next Big IDEAs About Health Data, Dominique Legacy and Laura Ferreira-Legere will discuss ICES's approach to building community partnerships to support Indigenous data governance.

REGISTER

News from Across the Network

Graphic of two computers connected. CIHI logo at bottom.

New changes in coding direction for homelessness

The Canadian Institute of Health Information announced important changes in coding direction for homelessness, clarifying the use of the Canadian definition from the Canadian Observatory on Homelessness to ensure consistent data collection. 

No significant visuals. Text reads: Machine learning prediction of premature mortality from multimorbidity at death among persons with Inflammatory Bowel Disease. ICES logo at bottom.

Machine learning to predict premature death

A new study using administrative data from ICES developed statistical and machine learning models to predict premature death from multimorbidity, the co-occurence of chronic conditions, among people with inflammatory bowel disease.

No significant visuals. Text reads: Les femmes sont proportionellement plus nombreuses que les hommes a trouver la plupart de leurs journees assez ou extremement stressantes. ISQ logo at bottom.

The evolution of gender equality in Quebec

For International Women's Day, the Institut de la statistique du Québec highlighted interesting data from their Statistical Showcase on Equality Between Women and Men, which contains a wealth of statistics comparing the living conditions of women and men in Quebec.   

No significant visual. Text reads: Health Professional-led research funding. NL SUPPORT logo at bottom.

Health professionals leading patient-oriented research

NL SUPPORT has released a summary of the projects awarded their Health Professional-led Research Funding. Read about these exciting initiatives which will help to develop patient-oriented research and evaluation capacity in Newfoundland and Labrador. 

Logo of Statistics Canada

Advancing health equity with CanCHEC data

Learn how data from Statistics Canada's Canadian Census Health and Environment Cohorts (CanCHEC) drives research and informs health policy by exploring a recent study on disparities in avoidable hospitalizations among racialized groups in Canada.

Graphic of a doctor, an elderly man and a woman on a computer. Unité de soutien SSA Québec logo at bottom.

Succeeding in Organizational Participatory Research

Unité de soutien SSA Québec has released an interactive guide to support Organizational Participatory Research. Available in English and French, the guide outlines challenges and solutions for implementing change within a health organization such as a clinic or hospital. 

In the Media

Dr. Alan Katz, a white man with grey hair and glasses. Text reads: In the media Dr. Alan Katz Senior Research Scientist University of Manitoba Featured in CBC Manitoba. Health Data Research Network Canada logo at bottom.

A retrospective look at long COVID five years later

MCHP Senior Research Scientist, and former HDRN Canada Executive member, Dr. Alan Katz spoke with CBC Manitoba about his work studying long COVID, the ongoing impact of the virus and the challenges in accessing care and supports for those impacted.

In Case You Missed It!

Carrie-Anne Whyte, a white woman with long brown hair. Text reads: Discussion Sessions Making progress in a DASH: The modernization of HDRN Canada's data access services. Health Data Research Network Canada logo at bottom.

Modernizing HDRN Canada's data access services

In the last HDRN Canada Discussion Session, Carrie-Anne Whyte, Data Access Support Hub (DASH) Program Lead, discussed recent enhancements to multi-regional data access services, improving the researcher experience.

WATCH

Diana Ridgeway, an asian woman with long dark hair. Lucie Richard, a white woman with red hair. Text reads: Big IDEAs About Health Data Homelessness in Health Administrative Data. Health Data Research Network Canada logo at bottom.

Homelessness in health administrative data

Check out the recording from our recent Big IDEAs About Health Data webinar with Lucie Richard (St. Michael's Hospital) and Diana Ridgeway (CIHI) talking about improvements and best practices for using identifiers of homelessness in health administrative data. 

WATCH