Spring/Summer 2024

In this issue

Patient Experience Week

Patient Experience Week, April 29 – May 3, provides us with a reminder to think about patient goal-setting, which was identified as a key improvement opportunity in the 2022 provincial patient experience survey.

At the BC Kidney Days conference last fall, BC Renal patient partner Paul Watson spoke about what patient goal-setting means to him. You can watch the recording here, which also includes health professionals who were part of the panel session. We hope Paul’s story will inspire and encourage other patients to think about what’s important to them and share their goals with their health-care team.

See the Self Management section of the BC Renal website for more information and resources.

National Advance Care Planning Day

This year’s National Advance Care Planning (ACP) Day, which took place on April 16, provides an opportunity for everyone to plan ahead in case we’re unable to speak for ourselves in the event of a health emergency. The theme of “If Not You, Who?” helps us identify who would speak on our behalf – in other words, who could be our “substitute decision maker.” Once you’ve identified who would speak for you, let your health-care providers know. Learn more:

Advance Care Planning – What is it? Steps to take

ACP Day 2024 info and resources

More resources in English, Hindi, Punjabi, Simplified Chinese and Traditional Chinese

Additional Resources

BC Renal has a new Integrative Palliative Nephrology Resource Guide for health professionals. See our related Palliative Care web page for this and additional tools and resources covering End-of-Life Framework, Serious Illness Conversation Guides, Advance Care Planning and more.

From the new guide: “A palliative approach with ongoing discussions is essential for comprehensive care of individuals to ensure CKD care addresses what is important to them to enhance their quality of life. Individuals who have these conversations with their clinicians about their values, goals, and wishes are more likely to receive the care they want, feel less distress and report better quality of life.”

Earth Day 2024

Highlighting BC Renal planetary health

For Earth Day 2024, BC Renal is highlighting a few new and ongoing initiatives and resources aimed at reducing waste and improving the health of the planet while continuing to ensure the best possible care for British Columbians living with kidney disease.

These include a newly published BC research abstract, “Nephrology Nurses: Essential Professionals in Sustainable Kidney Care,” an
Apr. 26 webinar by BC Renal’s medical lead in planetary health, step-by-step guides for renal programs from CASCADES, and a waste management Learning Hub course for Lower Mainland clinical staff, and more. See full article

National Volunteer Week

Thank you! Huge thanks to all BC Renal patient partners and health professionals who volunteer with our many committees and working groups. Your contributions are vital to the success of our provincial renal network and we greatly appreciate your dedication to British Columbians living with kidney disease. Let’s all take time to reflect and be grateful for the efforts of these individuals!

To learn more about BC Renal patient partner opportunities - for patients, their family members or other care partners - see the Patient & Family Engagement section of our website.

To learn more about BC Renal’s various provincial committees, see Our Committees page.

Strategic Plan

Putting our strategic plan into action

The current BC Renal strategic action plan guiding our work through 2028 is more than words on a page. We’re committed to using its four strategic priorities as a touchstone for all we do, while also weaving in the three foundational principles that underpin our plan. (See graphic for priorities and principles.)

As you may recall, in 2022-23, we worked with our BC Renal network partners, including provincial committee members, health authority renal program leadership and patient and family partners, to develop this plan.

Going forward, all BC Renal provincial committees are asked to take on only one project at a time (with timelines varying from one year to multiple depending on scope) and to ensure their project aligns with at least one priority. In the months ahead, we’ll be meeting with all committee chairs, vice chairs and project managers to discuss opportunities to embed the foundational principles into their projects - a relatively new concept that we are co-creating together.

People Profiles

Have you had a chance to read our recent stories featuring BC Renal executive director Dr. Adeera Levin, and medical lead, planetary health, Dr. Caroline Stigant? Learn more about their outstanding contributions to kidney research and care!

International Consensus Statement 

Calls for urgent action to address chronic kidney disease on the global public health agenda

As announced by the American Society of Nephrology, the European Renal Association and the International Society of Nephrology, Nature Reviews Nephrology published a landmark international consensus statement on April 3 titled “Chronic Kidney Disease and the Global Public Health Agenda: An International Consensus.”

Authored by a coalition of leading experts, stakeholders, and nephrology societies, the publication highlights critical policy, advocacy, and implementation needs to alleviate the growing burden of kidney disease worldwide. See Chronic kidney disease and the global public health agenda: an international consensus | Nature Reviews Nephrology

Kidney Health Challenge Video

New! Check out our new 5-minute video compilation of 31 tips for maintaining kidney health and overall wellness. These colourful, animated tips have been updated for 2024 and were part of our recent KIdney Health Month awareness campaign. Share with friends, family and colleagues for healthier kidneys and overall well-being!

Note: Fluid and diet tips are not intended for kidney patients. If you have diagnosed kidney disease, please talk to your care team for advice.

See: 31 Tips for Good Kidney Health

Event Spotlight

The following are for health professionals and patient partners unless otherwise noted.

Deadlines are fast approaching!

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We acknowledge with gratitude that our BC Renal offices are located on the traditional, unceded territory of the Coast Salish, home of the Musqueam, Tsleil-Waututh and Squamish peoples, as well as the Métis chartered communities of the Lower Mainland