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What's Up @ HDRN Canada?

Julia Burt, a white woman stands smiling next to a poster at the 2024 IPDLN Conference, where she has been awarded the Best Poster prize. The poster behind her is titled "Understanding Health Data Social Licence: An international comparison of community attitudes towards the use of health data in Canada & Australia." Text reads: Julia Burt, WINNER: Best Poster, IPDLN 2024. The logo of 2024 IPDLN Conference, Adapting to a Changing World is at bottom left. The logo for Health Data Research Network Canada (HDRN) at bottom right..

HDRN Canada's strong showing at IPDLN 2024

HDRN Canada made a strong showing at this year's International Population Data Linkage Network (IPDLN) Conference, with multiple workshops, sessions and posters. Congrats to Public Engagement Lead Julia Burt who took home best poster for her work social licence!

Jaxon Diamond, a white man smiling and wearing a blue suit. Text reads: Profile. Jaxon Diamond, Public Advisory Council. The logo for Health Data Research Network Canada is at bottom.

Public Advisory Council Profile: Jaxon Diamond

Check out this new profile on HDRN Canada's Public Advisory Council member Jaxon Diamond, a kinesiology student at the University of Regina with an interest in sports and health. Jaxon discusses his passion for representing public perspectives in health data research. 

A woman in green hijab and green coat holding a clipboard, a woman in white coat with curly hair holding a tablet, and a bearded man in blue scrubs having his arms crossed. Text reads: HDRN Canada's Pragmatic Trials Training Program. The logo for Health Data Research Network Canada is at bottom.

Open-access modules on pragmatic clinical trials

Curious about the HDRN Canada Pragmatic Trials Training Program? Open-access modules on clinical trial design and implementation are now freely available and cover topics such as intent and question, implementation and impact, partnership and support, and inclusion, equity, diversity and accessibility.

A dark blue background with light blue and green shapes in the corner. Text reads: Read the report! SPOR Refresh Community Engagement. The logo for Health Data Research Network Canada is at bottom.

SPOR Refresh Engagement Summary Report

A report on findings from Canada's Strategy for Patient-Oriented Research (SPOR) Refresh is now available. HDRN Canada participated in the engagement process, which sought input on how to improve the SPOR program, by facilitating an extensive set of online consultations.

Upcoming Events

An aerial view of Vancouver at dusk, showing the city skyline and harbor. Text reads: October 21 - 22, 2024 | Vancouver, British Columbia, Pinnacle Hotel Harbourfront at the top. 2024 Pan-Canadian Conference on Health Information, Presented by CHIMA. A "Register Today" button is at the bottom.

2024 Pan-Canadian Conference on Health Information | OCTOBER 21-22 | VANCOUVER

HDRN Canada is proud to sponsor CHIMA's Pan-Canadian Conference on Health Information in Vancouver, featuring Dr. John Hirdes, Dr. Marcia Anderson and André Picard exploring how health information can enhance care.

REGISTER

A light purple background with yellow accents. Logo shows two overlapping yellow head silhouettes. Text reads: Health Workforce Canada Connects. Advancing health workforce solutions. October 30 - 31, 2024. Montreal, QC, DoubleTree by Hilton.  Join in-person or virtually.

Health Workforce Canada Connects | OCTOBER 30-31 | MONTREAL

Health Workforce Canada will host its inaugural symposium, Health Workforce Canada Connects, in Montréal. The event will unite leaders in the sector to advance health workforce solutions, focusing on data, planning and worker wellness.


REGISTER

A white background with blue and coral accents. YSPOR logo shows two figures embracing. Decorative blue flowers and coral shapes in corners. Text reads: Health Summit 2024 in large blue letters. Theme: "Building capacity with Youth".

YSPOR Health Summit 2024 | NOVEMBER 7  8:00 a.m. - 5:00 p.m. MT

The 2024 YSPOR Health Summit will take place in Whitehorse this year. The event will gather health leaders and innovators to explore key topics in health promotion and youth engagement. Register now to attend in-person or online.

REGISTER

A white background with capitalized word SHARE in colorful letters made of small circles. Text reads: Science, Health and Research Education Summit. November 12, 2024 Virtual or In-person. Registration today! www.qcnl.ca/share. Logos for Quality of Care NL and NL SUPPORT at bottom.

SHARE Summit | NOVEMBER 12 | 9:00 a.m. - 3:45 p.m. NT

NL SUPPORT’s 10th annual Science, Health and Research Education (SHARE) Summit is a showcase for applied health research in Newfoundland and Labrador. Check out the program and register to attend in-person or online.

REGISTER

Text reads: 2024 Health Data User Conference, November 14, 2024, Ottawa, Ontario. The Statistics Canada and Government of Canada logos are at the bottom.

2024 Health Data User Conference 
NOVEMBER 14 | 8:00 a.m. - 4:30 p.m. ET

Explore innovative data solutions for key health issues at the 2024 Health Data User Conference. Co-hosted by Statistics Canada and the Public Health Agency of Canada, this in-person event brings together health data users and providers.

REGISTER

Graphic features a hand-drawn lightbulb. Text reads: Big IDEAs About Health Data Speaker Series, Thursday, November 28, 10:00 a.m. PT | 1:00 p.m. ET. Photos of featured speakers include Scott Sinclair, a white man wearing glasses and white dress shirt, Marni Brownell, a white woman with short white hair wearing black blazer and pink shirt, Stephanie Sinclair, a white woman with dark hair wearing a blue jean jacket, and Anita Durksen, a white woman with long brown hair wearing white blazer. The Health Data Research Network Canada logo is at the bottom.

A Partnership Approach to Impactful Research | NOVEMBER 28 | 10:00 - 11:00 a.m. PT

HDRN Canada's Big IDEAs About Health Data Speaker Series kicks off with Dr. Marni Brownell, Anita Durksen, Scott Sinclair and Stephanie Sinclair from SPECTRUM discussing a partnership approach to research.

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News from Across the Network

Four people seating at a table during an event. One man is signing a document while others look on. A banner to the left displays the CanPath logo, and the screen behind them reads: CanPath 15, and displays details about an event held at the Ontario Institute for Cancer Research.

New CanPath and CIHI partnership

CanPath and the Canadian Institute for Health Information (CIHI) have partnered to enhance understanding of Canadians' health outcomes. This collaboration combines CIHI’s health services data with CanPath’s genomic and lifestyle data for deeper insights into health trends.

An infographic with title reads: Leg amputations associated with diabetes" by the Canadian Institute for Health Information. Shows statistics: 3x higher risk for males (14 per 100,000) vs females (5 per 100,000), and 3x higher for lowest-income neighborhoods (16 per 100,000) vs highest-income (5 per 100,000).

CIHI report highlights disparities in diabetes care 

CIHI released a report highlighting disparities in diabetes care, particularly concerning lower limb amputations. The findings emphasize a need for equitable access to care and improved outcomes for marginalized populations affected by diabetes in Canada.

Dominique Legacy, a smiling woman with long brown hair. Text reads: I think that giving an Indigenous person a seat at the table where decisions are being made is just wonderful, and that is really where we should be sitting. The quote is on a dark blue background next to the woman's photo.

Inaugural Director of Indigenous Partnerships at ICES

ICES recently announced the hiring of Dominique Legacy in the inaugural role of Director of Indigenous Partnerships, Data & Analytics. Read about Dominique's hopes for future work towards Indigenous self-determination and self-governance.

A woman looking at computer screens displaying data repository information. Text reads: Manitoba Centre for Health Policy. The logo for University of Manitoba Rady Faculty of Health Sciences is at bottom.

Supporting researchers using MCHP Repository Data

The Manitoba Centre for Health Policy (MCHP) has received funding to support expanded repository access. The Essential Data Science Toolbox project will make it easier for external researchers to access and use data from the Manitoba Population Research Data Repository.

Dr. Lisa Lix, a white woman with short hair and glasses smiling at the camera. Text reads: Congrats Dr. Lisa Lix!

Dr. Lisa Lix elected to the CAHS

HDRN Canada Lead Dr. Lisa Lix, Director of Data Science at George and Fay Yee Centre for Healthcare Innovation has been elected as a Canadian Academy of Health Sciences Fellow, one of the highest honours in the Canadian health sciences community. Congrats Dr. Lix!

Logo of Population Data BC.

New COVID-19 immunization data available

The BC Centre for Disease control's COVID-19 vaccination data is now available to researchers to access through Population Data BC. Collected via CareConnect, this dataset includes details on vaccine type, frequency, location, reason for immunization and mixing.

A cartoon illustration of a group discussion outdoors. Two people standing, three sitting. Logos at bottom for Unité de Soutien SSA Québec, McGill Department of Family Medicine, Principe de Joyce, and Tabarikonisonténie'.

New report on cultural safety in health research

Unité de soutien SSA Québec has collaboratively produced Cultural Safety in Indigenous Health Research Contexta report of recommendations drawn from an unprecedented round-table discussion representatives from 10 of 11 Indigenous nations in Quebec.

Statistics Canada logo

Canadian Health Survey on Children & Youth insights

Statistics Canada has released findings from the 2023 Canadian Health Survey on Children and Youth, which examines how the physical and mental well-being of children and youth has evolved over the past four years since the 2019 survey. 

In Case You Missed It!

No significant visual. Text reads: Inclusion of people with disabilities in research: Lessons from a study on disability and pregnancy. Presented by: Hilary K. Brown, Assistant Professor, Uniiversity of Toronto. Twitter handle: @HilaryBrown. Laurie Proulx, Managing DIrector, Canadian Arthritis Patient Alliance. Twitter handle: @ProulxLaurie.

ICES Equity in Focus Speaker Series

Watch this webinar from ICES' Equity in Focus Speaker Series on community-engaged research featuring Dr. Hilary Brown and Laurie Proulx discussing recent research on disability and pregnancy in Canada. 

WATCH

No significant visual. Text reads: Bites and insights Series Presentation. What have we learned about aging well from the Canadian Longitudinal Study on Aging (CLSA). Logo of the Canadian Longitudinal Study on Aging is at bottom left.

Insights on aging well in Canada

What have we learned about aging well from the Canadian Longitudinal Study on Aging (CLSA)? Check out this recording about the connections between adverse childhood experiences, stress and obesity.

WATCH